[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100654483":3},{"organization":4,"outcomesModule":7,"designInfo":14,"detailedDescription":13,"studyPopulation":16,"armGroups":17,"interventions":13,"overallOfficials":13,"centralContacts":21,"locations":27,"responsibleParty":52,"collaborators":13,"id":56,"slug":57,"hasResults":58,"nctId":59,"briefTitle":60,"officialTitle":60,"acronym":61,"eligibilityCriteria":62,"healthyVolunteers":58,"sex":63,"minAge":13,"maxAge":64,"enrollmentInfo":65,"targetDuration":68,"studyType":69,"phases":13,"briefSummary":70,"conditions":71,"keywords":73,"overallStatus":30,"whyStopped":13,"lastUpdateSubmitDate":75,"lastUpdatePostDateStruct":76,"startDateStruct":79,"completionDateStruct":81,"leadSponsor":83,"locationsCount":84},{"fullName":5,"class":6},"Ain Shams University","OTHER",{"primaryOutcomes":8,"secondaryOutcomes":13,"otherOutcomes":13},[9],{"measure":10,"description":11,"timeFrame":12},"Institutional database","To create databases and institutional registry for managing the clinical data","2 years",null,{"allocation":13,"interventionModel":13,"interventionModelDescription":13,"primaryPurpose":13,"observationalModel":15,"timePerspective":6,"maskingInfo":13},"COHORT","children, adolescents and young adults with sickle cell disease who were following at Hematology Oncology and BMT Unit, Children's Hospital, Ain Shams University from the initiation of clinic in 1975 till 01 Jan 2027.",[18],{"label":19,"type":13,"description":20,"interventionNames":13},"Children, adolescents and young adults with sickle cell disease","We will start with those who were\u002Fare following at Hematology Oncology and BMT Unit, Children's Hospital, Ain Shams University",[22],{"name":23,"role":24,"phone":25,"phoneExt":13,"email":26},"Dr. Fatma Ebeid Ebeid","CONTACT","+20 109 5569596","FatmaEbeid@med.asu.edu.eg",[28,46],{"facility":29,"status":30,"city":31,"state":13,"zip":32,"country":33,"countryCode":34,"cosmosGeoPoint":35,"geoPoint":40,"contacts":41},"Faculty of Medicine Ain Shams Research Institute- Clinical Research Center","RECRUITING","Cairo","11566","Egypt","EG",{"type":36,"coordinates":37},"Point",[38,39],31.24967,30.06263,{"lat":39,"lon":38},[42],{"name":43,"role":24,"phone":44,"phoneExt":13,"email":45},"Fatma Ebeid, MD, FRCPCH","+201095569596","fatmaebeid@med.asu.edu.eg",{"facility":47,"status":48,"city":31,"state":13,"zip":13,"country":33,"countryCode":34,"cosmosGeoPoint":49,"geoPoint":51,"contacts":13},"Faculty of medicine ain shams university","ACTIVE_NOT_RECRUITING",{"type":36,"coordinates":50},[38,39],{"lat":39,"lon":38},{"type":53,"investigatorFullName":54,"investigatorTitle":55,"investigatorAffiliation":5,"oldNameTitle":13,"oldOrganization":13},"PRINCIPAL_INVESTIGATOR","Fatma Soliman Elsayed Ebeid, MD","Prof of Pediatrics, Deputy Director of Ain Shams University Research Institute, Director of Ain Shams Clinical Research Center, Ain Shams University, Egypt","100654483","hemoglobin-disorders-in-egypt-sickle-cell-disease-ain-shams-university-institutional-registry-100654483",false,"NCT07800247","Hemoglobin Disorders in Egypt: Sickle Cell Disease Ain Shams University Institutional Registry","Egyptian SCD","Inclusion Criteria:\n\n* children, adolescents and young adults with sickle cell disease\n\nExclusion Criteria:\n\n* other inherited anemia","ALL","39 Years",{"count":66,"type":67},400,"ESTIMATED","2 Years","OBSERVATIONAL","This is a retrospective descriptive study to create an institutional registry that will continue as a prospective follow-up non-intervention study that will be carried out at Hematology Oncology and BMT Department, Children's Hospital, Ain-Shams University, Cairo, Egypt.",[72],"Sickle Cell Disease (SCD)",[74],"Hemoglobin","2026-08-30",{"date":77,"type":78},"2026-09-02","ACTUAL",{"date":80,"type":78},"2024-03-17",{"date":82,"type":67},"2027-03-01",{"name":5,"class":6},2]