[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100652444":3},{"organization":4,"armGroups":7,"interventions":18,"overallOfficials":12,"centralContacts":12,"locations":12,"responsibleParty":23,"collaborators":27,"id":30,"slug":31,"hasResults":32,"nctId":33,"briefTitle":34,"officialTitle":35,"acronym":12,"eligibilityCriteria":36,"healthyVolunteers":32,"sex":37,"minAge":38,"maxAge":12,"enrollmentInfo":39,"targetDuration":12,"studyType":42,"phases":43,"briefSummary":45,"conditions":46,"keywords":12,"overallStatus":49,"whyStopped":12,"lastUpdateSubmitDate":50,"lastUpdatePostDateStruct":51,"startDateStruct":54,"completionDateStruct":56,"leadSponsor":58,"locationsCount":12},{"fullName":5,"class":6},"Seattle Children's Hospital","OTHER",[8,13],{"label":9,"type":10,"description":11,"interventionNames":12},"Control","NO_INTERVENTION","Usual care control",null,{"label":14,"type":15,"description":12,"interventionNames":16},"Photo-narratives","EXPERIMENTAL",[17],"Behavioral: Photo-narratives",[19],{"type":20,"name":14,"description":21,"armGroupLabels":22,"otherNames":12},"BEHAVIORAL","Photo-narratives are created by patients\u002Ffamilies and include a series of captioned photos focused on who is important in their family, information about their quality of life, and their strengths. The narrative is accompanied by clinician prompts to facilitate patient\u002Ffamily-clinician discussion and engagement.",[14],{"type":24,"investigatorFullName":25,"investigatorTitle":26,"investigatorAffiliation":5,"oldNameTitle":12,"oldOrganization":12},"PRINCIPAL_INVESTIGATOR","Jori Bogetz","Associate Professor",[28],{"name":29,"class":6},"Monroe Carell Jr. Children's Hospital at Vanderbilt","100652444","phase-2-legacy-photo-narrative-study-100652444",false,"NCT07774663","Legacy Photo-narrative Study","Photo-narratives as a Legacy Intervention for Children With Medical Complexity and Their Families","Inclusion Criteria:\n\n* has a child who receives care at one of the study sites for a complex medical condition and is followed by the complex care and\u002For palliative care team\n* has a child who is ages 3 months through 25 years old\n* has a child who has previously been home\u002Fdischarged\n* has a child whose life expectancy of \\>6 months\n\nExclusion Criteria:\n\n* are not the child's identified parent\u002Flegally authorized representative\n* has a preferred language of care other than English or Spanish\n* has an active psychiatric or chronic health concerns that preclude research participation\n* has active child protective services involvement","ALL","3 Months",{"count":40,"type":41},40,"ESTIMATED","INTERVENTIONAL",[44],"PHASE2","Children with medical complexity (CMC) live full meaningful lives that are often short. CMC and their families experience substantial distress, poor mental health, and low emotional well-being. Existing research and our prior studies suggest that legacy, defined as the summation of qualities and experiences that form the child's enduring presence, can be a resource for actionable appraisal of and coping with stressful life experiences. Photo-narratives are a novel intervention that facilitate family sharing of images to tell stories about everyday experiences related to their child's quality-of-life and personhood. In our prior studies, families reported that photo-narratives were a simple, easy way to meaningfully connect and had the potential to be an important part of their child's legacy. What remains poorly understood, however, is how photo-narratives might impact family-centered outcomes. This study aims to and evaluate the feasibility, acceptability, and potential impact of photo-narratives in a pilot randomized controlled trial.",[47,48],"Children With Medical Complexity (CMC)","Family Caregivers","NOT_YET_RECRUITING","2026-08-17",{"date":52,"type":53},"2026-08-19","ACTUAL",{"date":55,"type":41},"2027-06-01",{"date":57,"type":41},"2028-06-15",{"name":5,"class":6}]