[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100648237":3},{"organization":4,"armGroups":7,"interventions":10,"overallOfficials":14,"centralContacts":19,"locations":26,"responsibleParty":40,"collaborators":10,"id":42,"slug":43,"hasResults":44,"nctId":45,"briefTitle":46,"officialTitle":47,"acronym":10,"eligibilityCriteria":48,"healthyVolunteers":44,"sex":49,"minAge":10,"maxAge":50,"enrollmentInfo":51,"targetDuration":54,"studyType":55,"phases":10,"briefSummary":56,"conditions":57,"keywords":59,"overallStatus":61,"whyStopped":10,"lastUpdateSubmitDate":62,"lastUpdatePostDateStruct":63,"startDateStruct":66,"completionDateStruct":68,"leadSponsor":70,"locationsCount":71},{"fullName":5,"class":6},"Robert Jones and Agnes Hunt Orthopaedic and District NHS Trust","OTHER_GOV",[8,12],{"label":9,"type":10,"description":11,"interventionNames":10},"Focus group",null,"Discussion regarding the development of a questionnaire",{"label":13,"type":10,"description":10,"interventionNames":10},"Completing questionnaire",[15],{"name":16,"affiliation":17,"role":18},"Nicholas Emery","Neuromuscular Clinical Specialist Physiotherapist","PRINCIPAL_INVESTIGATOR",[20],{"name":21,"role":22,"phone":23,"phoneExt":24,"email":25},"Julie Steen","CONTACT","01691 404418","4418","julie.steen@nhs.net",[27],{"facility":28,"status":10,"city":29,"state":30,"zip":31,"country":32,"countryCode":33,"cosmosGeoPoint":34,"geoPoint":39,"contacts":10},"The Robert Jones & Agnes Hunt Orthopaedic Hospital","Oswestry","Shropshire","SY10 7AG","United Kingdom","UK",{"type":35,"coordinates":36},"Point",[37,38],-3.05497,52.86195,{"lat":38,"lon":37},{"type":41,"investigatorFullName":10,"investigatorTitle":10,"investigatorAffiliation":10,"oldNameTitle":10,"oldOrganization":10},"SPONSOR","100648237","spinal-muscular-atrophy-and-school-transitions-100648237",false,"NCT07720518","Spinal Muscular Atrophy and School Transitions","Exploring Educational Transitions in Children and Young People With Spinal Muscular Atrophy: A Qualitative Study of Patient and Family Experiences.","Inclusion Criteria:\n\n* Genetically confirmed diagnosis of Spinal Muscular Atrophy 1, 11 or 111\n* In education, in either primary school, secondary school or further education\n* Access to internet and either a smart phone, tablet or computer.\n\nExclusion Criteria:\n\n* Not in education\n* Not able to comply with the consent process\n* Not cognitively able to complete the questionnaire.","ALL","25 Years",{"count":52,"type":53},20,"ESTIMATED","1 Month","OBSERVATIONAL","A qualitative questionnaire-based study to explore the experiences of children and young people with Spinal Muscular Atrophy (SMA) and their families regarding school transition and educational participation.\n\nThe study objectives:\n\nTo identify barriers to successful educational transition. To advocate for patients and families during the transitional process. To explore experiences of inclusion, access and support within school settings. To understand the coordination between education, healthcare and support services.\n\nTo inform the development of practical, patient-centred guidance to improve educational transitions for children and young people with SMA.",[58],"Spinal Muscular Atrophy",[60],"SMA type 11 and 111","NOT_YET_RECRUITING","2026-07-17",{"date":64,"type":65},"2026-07-22","ACTUAL",{"date":67,"type":53},"2026-08-10",{"date":69,"type":53},"2027-02-28",{"name":5,"class":6},1]