[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100652016":3},{"organization":4,"armGroups":7,"interventions":10,"overallOfficials":12,"centralContacts":21,"locations":28,"responsibleParty":45,"collaborators":47,"id":50,"slug":51,"hasResults":52,"nctId":53,"briefTitle":54,"officialTitle":55,"acronym":10,"eligibilityCriteria":56,"healthyVolunteers":52,"sex":57,"minAge":10,"maxAge":10,"enrollmentInfo":58,"targetDuration":10,"studyType":61,"phases":10,"briefSummary":62,"conditions":63,"keywords":66,"overallStatus":30,"whyStopped":10,"lastUpdateSubmitDate":84,"lastUpdatePostDateStruct":85,"startDateStruct":88,"completionDateStruct":90,"leadSponsor":92,"locationsCount":93},{"fullName":5,"class":6},"Appendix Cancer Pseudomyxoma Peritonei Research Foundation","OTHER",[8],{"label":9,"type":10,"description":11,"interventionNames":10},"Participants with Appendix Cancer and\u002For Pseudomyxoma Peritonei (PMP)",null,"Individuals diagnosed with appendix cancer and\u002For Pseudomyxoma Peritonei (PMP) who enroll in the ACPMP Research Foundation Appendix Cancer\u002FPMP Patient Registry. Participants, caregivers, or authorized representatives provide health and disease-related information through online surveys and may periodically update their information over time.",[13,17],{"name":14,"affiliation":15,"role":16},"Deborah Shelton","ACPMP","PRINCIPAL_INVESTIGATOR",{"name":18,"affiliation":19,"role":20},"Dr. Erin P. Ward, MD","University of Utah","STUDY_CHAIR",[22],{"name":23,"role":24,"phone":25,"phoneExt":26,"email":27},"Margaret Najarian","CONTACT","(833) 227-6773","704","patientregistry@acpmp.org",[29],{"facility":15,"status":30,"city":31,"state":32,"zip":33,"country":34,"countryCode":35,"cosmosGeoPoint":36,"geoPoint":41,"contacts":42},"RECRUITING","Springfield","Pennsylvania","19064","United States","US",{"type":37,"coordinates":38},"Point",[39,40],-75.32019,39.93067,{"lat":40,"lon":39},[43],{"name":44,"role":24,"phone":25,"phoneExt":26,"email":27},"Margaret Najarian Patient Registry Coordinator",{"type":46,"investigatorFullName":10,"investigatorTitle":10,"investigatorAffiliation":10,"oldNameTitle":10,"oldOrganization":10},"SPONSOR",[48],{"name":49,"class":6},"National Organization for Rare Disorders","100652016","the-appendix-cancer-pmp-research-foundation-natural-history-studypatient-registry-100652016",false,"NCT07769346","The Appendix Cancer PMP Research Foundation Natural History Study\u002FPatient Registry","The ACPMP Research Foundation Appendix Cancer\u002FPMP Patient Registry","Inclusion Criteria:\n\n* Diagnosis of appendix cancer.\n* Meets the study inclusion criteria for participation.\n* Participant or, when applicable, a legally authorized representative (LAR) is able to provide informed consent and enter information into the Registry.\n* A designated representative may provide retrospective information for an individual who died from appendix cancer, as permitted by the study protocol.\n\nExclusion Criteria:\n\n* Individuals who do not meet the study inclusion criteria.\n* Individuals for whom required informed consent cannot be obtained.","ALL",{"count":59,"type":60},10000,"ESTIMATED","OBSERVATIONAL","ACPMP's first-ever patient-powered global patient registry\u002Fnatural history study collects patient and caregiver information and data to fuel clinical trials and drive breakthroughs for appendix cancer and PMP. We've invested the time and resources to make our Registry regulatory grade. Our Registry operates under active, ongoing Institutional Review Board (IRB) oversight by independent ethicists. It is powered by NORD's IAMRARE®, an industry gold standard platform built to be consistent with FDA's best thinking on natural history studies.",[64,65],"Appendix Cancer","Pseudomyxoma Peritonei",[64,67,68,69,70,65,71,72,73,74,75,76,77,78,79,80,81,82,83],"Appendiceal Cancer","Appendiceal Neoplasm","Appendiceal Neoplasms","Appendiceal Adenocarcinoma","PMP","Peritoneal Surface Malignancy","Peritoneal Surface Malignancies","Patient Registry","Rare Cancer","Natural History Study","Natural History","Goblet Cell","Signet Ring Cell","LAMN","Low-Grade Appendiceal Mucinous Neoplasm","High-Grade Appendiceal Mucinous Neoplasm","HAMN","2026-08-14",{"date":86,"type":87},"2026-08-17","ACTUAL",{"date":89,"type":87},"2026-02-02",{"date":91,"type":60},"2030-02-01",{"name":5,"class":6},1]