[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100659033":3},{"organization":4,"outcomesModule":7,"designInfo":48,"detailedDescription":54,"studyPopulation":47,"armGroups":55,"interventions":62,"overallOfficials":69,"centralContacts":73,"locations":77,"responsibleParty":92,"collaborators":47,"id":94,"slug":95,"hasResults":96,"nctId":97,"briefTitle":98,"officialTitle":98,"acronym":47,"eligibilityCriteria":99,"healthyVolunteers":96,"sex":100,"minAge":47,"maxAge":47,"enrollmentInfo":101,"targetDuration":47,"studyType":104,"phases":105,"briefSummary":106,"conditions":107,"keywords":109,"overallStatus":80,"whyStopped":47,"lastUpdateSubmitDate":113,"lastUpdatePostDateStruct":114,"startDateStruct":117,"completionDateStruct":119,"leadSponsor":121,"locationsCount":122},{"fullName":5,"class":6},"University of Wisconsin, Madison","OTHER",{"primaryOutcomes":8,"secondaryOutcomes":22,"otherOutcomes":47},[9,13,16,19],{"measure":10,"description":11,"timeFrame":12},"Devaluation of Consumer Families (DCFS) Scale","9-items scored on a 4 point likert scale from 1 (strongly disagree) to 4 (strongly agree). Total range of scores is 9-36 with higher scores indicating higher devaluation of the family.","baseline (pre-intervention) and 6 weeks (post-intervention)",{"measure":14,"description":15,"timeFrame":12},"Self-Compassion Scale Score","Self-Compassion Scale (26-item), scored from 26 to 130, with higher scores indicating greater self-compassion.",{"measure":17,"description":18,"timeFrame":12},"Caregiving Appraisal Scale Score: Agreement","Caregiving Appraisal Scale (6-item) scored from 6-30 where higher scores indicate higher appraisal.",{"measure":20,"description":21,"timeFrame":12},"Caregiving Appraisal Scale Score: Frequency","Caregiving Appraisal Scale (23-item) scored from 23-115 where higher scores indicate more frequency of appraisal.",[23,26,29,32,35,38,41,44],{"measure":24,"description":25,"timeFrame":12},"Family Empowerment Scale Score","Family Empowerment Scale (12-item) scored from 12-60 with higher scores meaning more empowered.",{"measure":27,"description":28,"timeFrame":12},"State Hope Scale Score","State Hope Scale (6-item) scored from 6-48 where higher scores indicate more hope",{"measure":30,"description":31,"timeFrame":12},"Caregiving Confidence Scale (CSES-8) Score","CSES-8 scored from 1-10 with higher scores meaning more confidence",{"measure":33,"description":34,"timeFrame":12},"Affiliate Stigma Scale Score","Affiliate Stigma Scale (22-item) scored from 22-88 where higher scores indicate increased stigma",{"measure":36,"description":37,"timeFrame":12},"Caregiving Flexibility Score","Caregiving flexibility score (18-item) scored from 18-72 where higher scores indicate increased flexibility",{"measure":39,"description":40,"timeFrame":12},"Feeling of Loneliness Score","Feeling of Loneliness (3-item) scored from 3-9 where higher scores indicate increased loneliness",{"measure":42,"description":43,"timeFrame":12},"Autonomy Support Scale Score","Autonomy Support Scale (5-item) scored from 5-20 where higher scores indicate more autonomy",{"measure":45,"description":46,"timeFrame":12},"Emotional Support Scale Score","Emotional Support Scale (6-item) scored from 6-30 where higher scores indicate increased emotional support",null,{"allocation":49,"interventionModel":50,"interventionModelDescription":47,"primaryPurpose":51,"observationalModel":47,"timePerspective":47,"maskingInfo":52},"NA","SINGLE_GROUP","SUPPORTIVE_CARE",{"masking":53,"maskingDescription":47,"whoMasked":47},"NONE","This program has three components:\n\n1. program participation, which includes six virtual sessions and one optional celebration session\n2. eight surveys, including one pre-program survey, one post-program survey, and six post-session surveys to collect participants feedback on each session; and\n3. one optional one-on-one interview.\n\nFor the six sessions, this program utilizes a peer-facilitated model, recognizing the unique expertise that comes from lived experience. Some aspects of navigating transition can only be fully understood and effectively communicated by fellow family caregivers, rather than by professionals.\n\nAttendees are encouraged to bring their broader life experiences, including those unrelated to caregiving, when they see these experiences as central to who they are. The program welcomes participants as whole people, honoring both their caregiving role and the parts of their lives that extend beyond it.\n\nSession content and topics are built from a series of interviews with family caregivers. The program not only covers what was openly discussed in those interviews but also explores what was less visible, what may have been unspoken, hidden, or missing from the conversations.",[56],{"label":57,"type":58,"description":59,"interventionNames":60},"Family Caregivers","EXPERIMENTAL","Family Caregivers of Autistic Young Adults",[61],"Other: Group Intervention",[63],{"type":6,"name":64,"description":65,"armGroupLabels":66,"otherNames":67},"Group Intervention","Six 60-min virtual sessions Surveys before and after program intervention Optional post-intervention interview",[57],[68],"Anchors and Sails",[70],{"name":71,"affiliation":5,"role":72},"Sang Qin, PhD","PRINCIPAL_INVESTIGATOR",[74],{"name":71,"role":75,"phone":47,"phoneExt":47,"email":76},"CONTACT","sqin38@wisc.edu",[78],{"facility":79,"status":80,"city":81,"state":82,"zip":83,"country":84,"countryCode":85,"cosmosGeoPoint":86,"geoPoint":91,"contacts":47},"University of Wisconsin","RECRUITING","Madison","Wisconsin","53705","United States","US",{"type":87,"coordinates":88},"Point",[89,90],-89.40123,43.07305,{"lat":90,"lon":89},{"type":93,"investigatorFullName":47,"investigatorTitle":47,"investigatorAffiliation":47,"oldNameTitle":47,"oldOrganization":47},"SPONSOR","100659033","to-share-or-not-to-share-navigating-disclosure-and-stigma-among-family-caregivers-of-autistic-young-adultsgroup-intervention-100659033",false,"NCT07856927","To Share or Not To Share: Navigating Disclosure and Stigma Among Family Caregivers of Autistic Young Adults_Group Intervention","Inclusion Criteria:\n\n* Has a family member aged 18-26 who has received an autism-related diagnosis from a healthcare professional\n* Must be a primary caregiver for this family member\n* Must be able to speak, understand, and read English well\n* Participants will be able to provide consent themselves.\n\nExclusion Criteria:\n\n* Lack of proficiency in English\n* Not a primary caregiver for a family member with autism aged 18-26\n* Individuals requiring a guardian to provide consent will be excluded","ALL",{"count":102,"type":103},50,"ESTIMATED","INTERVENTIONAL",[49],"This study is a caregiver support program for family caregivers of autistic young adults (ages 18 to 26) as their family members navigate young adulthood. The program includes six 60-minute virtual sessions focused on making sense of caregiving roles during young adulthood, reflecting on everyday family experiences, supporting decision-making within families, deciding when and how to share experiences with others, and thinking about the future.",[108],"Autism",[110,111,112],"caregiver support","young adulthood","well-being","2026-09-28",{"date":115,"type":116},"2026-10-05","ACTUAL",{"date":118,"type":116},"2026-09-17",{"date":120,"type":103},"2027-06",{"name":5,"class":6},1]