[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-studies-list:{\"overallStatus\":[\"RECRUITING\",\"AVAILABLE\",\"NOT_YET_RECRUITING\"],\"leadSponsorName\":\"Dorothy House Hospice\",\"orderBy\":\"LastUpdateSubmitDate:desc\",\"size\":25,\"offset\":0}":3,"health-study-condition:":79},{"pageToken":4,"total":5,"offset":6,"count":5,"results":7},null,2,0,[8,53],{"id":9,"slug":10,"hasResults":11,"nctId":12,"briefTitle":13,"officialTitle":14,"acronym":15,"eligibilityCriteria":16,"healthyVolunteers":17,"sex":18,"minAge":19,"maxAge":4,"enrollmentInfo":20,"targetDuration":4,"studyType":23,"phases":4,"briefSummary":24,"conditions":25,"keywords":27,"overallStatus":41,"whyStopped":4,"lastUpdateSubmitDate":42,"lastUpdatePostDateStruct":43,"startDateStruct":46,"completionDateStruct":48,"leadSponsor":50,"locationsCount":4},"100649622","in-talk-co-producing-a-hospice-intimacy-support-toolkit-in-england-100649622",false,"NCT07737145","IN-TALK: Co-producing a Hospice Intimacy Support Toolkit in England","Co-producing a Hospice Intimacy Support Toolkit to Enable Intimacy Needs Conversations in England","IN-TALK","Inclusion Criteria:\n\nHospice service users: Aged 18 years or over. Hospice service users: Patients, partners, loved ones and bereaved people who are receiving, or have received, care or support services from hospices in England.\n\nHospice service users: Able to understand and communicate in spoken and written English, independently or with the support of an interpreter.\n\nHospice service users: Able and willing to provide informed consent. Healthcare professionals: Registered or non-registered healthcare professionals currently working within hospices in England involved in patient care and support.\n\nHealthcare professionals: Aged 18 years or over. Healthcare professionals: Able and willing to provide informed consent.\n\nExclusion Criteria:\n\nHospice service users: Cognitive impairment that impedes communication. Healthcare professionals: Registered and non-registered Healthcare professionals currently working outside of hospices; and England.",true,"ALL","18 Years",{"count":21,"type":22},794,"ESTIMATED","OBSERVATIONAL","People receiving hospice care may experience concerns about intimacy, closeness and physical affection that can affect their quality of life and wellbeing. However, healthcare professionals often report feeling uncertain about how to initiate or respond to conversations about intimacy needs. This can result in unmet needs and missed opportunities to provide holistic, person-centred care.\n\nThe aim of the IN-TALK study is to co-produce a hospice intimacy support toolkit to support healthcare professionals in initiating and responding to conversations about intimacy needs with people receiving hospice care in England.\n\nThis prospective mixed methods observational study uses Experience-Based Co-Design (EBCD) as its co-production methodology to develop a hospice intimacy support toolkit. Findings from the surveys will inform a series of co-production workshops involving hospice service users and healthcare professionals. Together, participants will co-produce the content and design of a hospice intimacy support toolkit to support person-centred care in hospice services across England.",[26],"Communication About Intimacy Needs in Hospice and Palliative Care",[28,29,30,31,32,33,34,35,36,37,38,39,40],"Hospice care","Palliative care","Intimacy","Communication","Co-production","Mixed methods","Healthcare professionals","Education","Training","Person-centred care","Support toolkit","Hospice service users","Holistic care","NOT_YET_RECRUITING","2026-07-29",{"date":44,"type":45},"2026-07-30","ACTUAL",{"date":47,"type":22},"2026-11-01",{"date":49,"type":22},"2028-05-31",{"name":51,"class":52},"Dorothy House Hospice","OTHER",{"id":54,"slug":55,"hasResults":11,"nctId":56,"briefTitle":57,"officialTitle":58,"acronym":59,"eligibilityCriteria":60,"healthyVolunteers":11,"sex":18,"minAge":19,"maxAge":4,"enrollmentInfo":61,"targetDuration":4,"studyType":23,"phases":4,"briefSummary":63,"conditions":64,"keywords":67,"overallStatus":69,"whyStopped":4,"lastUpdateSubmitDate":70,"lastUpdatePostDateStruct":71,"startDateStruct":73,"completionDateStruct":75,"leadSponsor":77,"locationsCount":78},"100630766","palliative-and-supportive-care-to-help-people-with-arthritis-to-live-well-enrich-100630766","NCT07491939","Palliative and Supportive Care to Help People With Arthritis to Live Well (ENRICH)","Exploring Perspectives on Palliative and Supportive Care, to Inform Recommendations to Help People Live Well With Inflammatory Arthritis Throughout the Disease Course (ENRICH)","ENRICH","Inclusion Criteria:\n\n* Adults (\\> 18 years) with a diagnosis of arthritis (Rheumatoid, Psoriatic or Juvenile Idiopathic) or Axial Spondyloarthritis\n* able to understand and communicate in verbal and written English (or via an interpreter nominated by the participant or provided via an agency by the research team)\n* in receipt, or not in receipt of Palliative Care services\n* access to Microsoft Teams or a telephone\n* consent to sharing preferred contact details\n\nExclusion Criteria:\n\n* Cognitive impairment that impedes communication\n* non-English speaker (should an interpreter not be available).",{"count":62,"type":22},120,"Palliative Care (PC) focuses on maximising quality of life and care for patients and their families in the last 1000 days of life. Supportive Care (SC) is provided earlier in life for people with a long-term health condition.\n\nPeople living with inflammatory arthritis, (such as rheumatoid arthritis) can experience ongoing pain, stiffness, limitations in their joints, and intrusive fatigue. This impacts daily living activities and emotional well-being. People with inflammatory arthritis would value support to manage symptoms across the course of their disease. They would like PC healthcare professionals (HCPs) to understand their conditions better, so they can live well to the end of their lives.\n\nAims:\n\nThe investigators will explore the potential role of Palliative and Supportive Care (PSC) for people with inflammatory arthritis. The investigators will describe any unmet patient need. The investigators will develop clinical and research recommendations to help people with inflammatory arthritis live well over the course of their disease.\n\nPlan:\n\nThe investigators research will be conducted in three studies:\n\nStudy 1: The investigators will conduct 1:1 online interviews with people with inflammatory arthritis to understand how PSC is perceived by them, and what their views are on how PSC may support them to live well.\n\nStudy 2: The investigators will send an online survey to Rheumatologists, Primary Care, Community and PC HCPs, to understand:\n\n* if and how they work together currently;\n* their views on the role of PSC supporting people with inflammatory arthritis to live well.\n\nStudy 3: The investigators will conduct online focus groups with volunteers from Studies 1 and 2, representatives from relevant national charities\u002Forganisations, and people who commission health services. Together the group will discuss the research findings and agree:\n\n* what the gap in patient care is;\n* recommendations for future clinical practice and research;\n* the key areas of importance for patients which should be measured in future work",[65,66],"Inflammatory Arthritis","Palliative Care",[68,66],"Inflammatory arthritis","RECRUITING","2026-03-24",{"date":72,"type":45},"2026-03-25",{"date":74,"type":45},"2026-02-19",{"date":76,"type":22},"2027-04",{"name":51,"class":52},1,""]