[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-studies-list:{\"overallStatus\":[\"RECRUITING\",\"AVAILABLE\",\"NOT_YET_RECRUITING\"],\"leadSponsorName\":\"Parkinson's Foundation\",\"orderBy\":\"LastUpdateSubmitDate:desc\",\"size\":25,\"offset\":0}":3,"health-study-condition:":63},{"pageToken":4,"total":5,"offset":6,"count":5,"results":7},null,2,0,[8,42],{"id":9,"slug":10,"hasResults":11,"nctId":12,"briefTitle":13,"officialTitle":13,"acronym":4,"eligibilityCriteria":14,"healthyVolunteers":11,"sex":15,"minAge":16,"maxAge":4,"enrollmentInfo":17,"targetDuration":20,"studyType":21,"phases":4,"briefSummary":22,"conditions":23,"keywords":25,"overallStatus":29,"whyStopped":4,"lastUpdateSubmitDate":30,"lastUpdatePostDateStruct":31,"startDateStruct":34,"completionDateStruct":36,"leadSponsor":38,"locationsCount":41},"100438802","parkinsons-foundation-pd-generation-genetic-registry-100438802",false,"NCT04994015","Parkinson's Foundation PD GENEration Genetic Registry","Inclusion Criteria:\n\n* Study Population 1: PWP (open for recruitment)\n\n  1. Meet Movement Disorder Society (MDS) Clinical Diagnostic Criteria for Parkinson's Disease: probable diagnosis.\n  2. Willingness to undergo genetic testing, and choose to be informed of genetic testing results for GBA, LRRK2 and 5 additional PD related genes (SNCA, VPS35, PRKN, PINK-1, PARK7).\n  3. Capacity to give full informed consent in writing or electronically, and have read and signed the informed consent forms (ICFs) based on site clinician's determination.\n  4. Able to perform study activities (including completion of either online, in-person or paper surveys).\n\nStudy Population 2: People at risk of developing PD (not open for recruitment)\n\n1\\. Family members of Study Population 1 may be invited to participate in the study if confirmatory genetic testing is deemed necessary by the genetic testing laboratory.\n\nExclusion Criteria:\n\n1. Diagnosis of an atypical parkinsonian disorder (i.e., multiple system atrophy, progressive supranuclear palsy, dementia with Lewy bodies, corticobasal syndrome), including that due to medications, metabolic disorders, encephalitis, cerebrovascular disease, or normal pressure hydrocephalus.\n2. Individuals who have received a blood transfusion within the past 3 months.\n3. Individuals who have active hematologic malignancies such as lymphoma or leukemia.\n4. Individuals who have had a bone marrow transplant within the past 5 years.\n5. Under the age of 18","ALL","18 Years",{"count":18,"type":19},35382,"ESTIMATED","30 Days","OBSERVATIONAL","Development of a central repository for PD-related genomic data for future research.",[24],"Parkinson's Disease",[26,27,28],"Genetics","Genetic Counseling","Whole Genome Sequencing","RECRUITING","2026-09-03",{"date":32,"type":33},"2026-09-08","ACTUAL",{"date":35,"type":33},"2020-12-20",{"date":37,"type":19},"2027-07-01",{"name":39,"class":40},"Parkinson's Foundation","OTHER",70,{"id":43,"slug":44,"hasResults":11,"nctId":45,"briefTitle":46,"officialTitle":46,"acronym":4,"eligibilityCriteria":47,"healthyVolunteers":11,"sex":15,"minAge":16,"maxAge":4,"enrollmentInfo":48,"targetDuration":50,"studyType":21,"phases":4,"briefSummary":51,"conditions":52,"keywords":4,"overallStatus":29,"whyStopped":4,"lastUpdateSubmitDate":54,"lastUpdatePostDateStruct":55,"startDateStruct":57,"completionDateStruct":59,"leadSponsor":61,"locationsCount":62},"100444387","parkinsons-foundation-surveys-100444387","NCT05066763","Parkinson's Foundation Surveys","Inclusion Criteria:\n\n* Willingness to be contacted by the Parkinson's Foundation for surveys and any future research opportunities\n* Anyone who self-reports that they have a diagnosis of Parkinson's disease\n* Care partner of a person with Parkinson's disease\n* Any health professional that regularly works with people with Parkinson's disease\n* 18 years of age or older\n\nExclusion Criteria:\n\n* People who report that they do not have a diagnosis of Parkinson's disease, are not a care partner to someone with PD or do not work with people with PD in the health setting\n* An individual younger than 18 years of age",{"count":49,"type":19},1000000,"10 Years","Parkinson's Foundation Surveys is an initiative seeking to periodically survey people with Parkinson's disease (PD), their care partners and medical professionals to better understand specific aspects of living with PD.",[53],"Parkinson Disease","2021-09-23",{"date":56,"type":33},"2021-10-04",{"date":58,"type":33},"2021-04-02",{"date":60,"type":19},"2030-12",{"name":39,"class":40},1,""]