[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-studies-list:{\"conditionNormalized\":\"myasthenia-gravis-thymectomy\",\"overallStatus\":[\"RECRUITING\",\"AVAILABLE\",\"NOT_YET_RECRUITING\"],\"orderBy\":\"LastUpdateSubmitDate:desc\",\"size\":25,\"offset\":0}":3,"health-study-condition:myasthenia-gravis-thymectomy":34},{"pageToken":4,"total":5,"offset":6,"count":5,"results":7},null,2,0,[8,71],{"id":9,"slug":10,"hasResults":11,"nctId":12,"briefTitle":13,"officialTitle":14,"acronym":15,"eligibilityCriteria":16,"healthyVolunteers":11,"sex":17,"minAge":18,"maxAge":4,"enrollmentInfo":19,"targetDuration":22,"studyType":23,"phases":4,"briefSummary":24,"conditions":25,"keywords":41,"overallStatus":58,"whyStopped":4,"lastUpdateSubmitDate":59,"lastUpdatePostDateStruct":60,"startDateStruct":63,"completionDateStruct":65,"leadSponsor":67,"locationsCount":70},"100651499","the-axis-registry-is-a-10-year-longitudinal-research-initiative-that-captures-the-real-world-experiences-of-people-living-with-autoimmune-neurology-conditions-launching-in-myasthenia-gravis-mg-we-plan-to-evaluate-expansion-to-other-conditions-across-autoimmune-neurology-100651499",false,"NCT07761026","AXIS MG Patient Registry","AXIS Autoimmune Neurology Registry","AXIS","Inclusion Criteria:\n\n* Physician-confirmed diagnosis of myasthenia gravis (MG)\n* Willing and legally able to provide consent\n* Lives in the United States\n\nExclusion Criteria:\n\n* Unwilling or unable to provide consent or comprehend and complete questionnaires\n* Cognitively impaired adults\u002Funable to comprehend or understand the consent or overall study information","ALL","18 Years",{"count":20,"type":21},1000,"ESTIMATED","10 Years","OBSERVATIONAL","The goal of the AXIS Autoimmune Neurology Registry is to learn about the experiences of adults living with autoimmune neurological disorders, starting with myasthenia gravis (MG), over time.\n\nThe main questions the registry aims to answer are:\n\n* How do symptoms, daily functioning, and quality of life change over time?\n* What treatments do participants use, and how are these treatments related to their symptoms and health?\n* What challenges do participants experience with treatment, including side effects, treatment burden, missed doses, and access to care?\n\nParticipants will:\n\n* Join the registry and complete an enrollment survey (online or through a mobile app)\n* Complete a brief online survey about their MG approximately once a month\n* Provide information that can help confirm their MG diagnosis\n* Optionally, share their medical records with the research team\n\nThis is an observational study. The registry will not assign treatments or ask participants to change their medical care. Information collected through the registry may help researchers better understand MG and improve future research and care.",[26,27,28,29,30,31,32,33,34,35,36,37,38,39,40],"Myasthenia Gravis (MG)","Myasthenia Gravis, Generalized","Myasthenia Gravis, Ocular","Myasthenia Gravis Crisis","Myasthenia Gravis Associated With Thymoma","Myasthenia Gravis Exacerbations","Myasthenia Gravis Generalised","Myasthenia Gravis Generalized","Myasthenia Gravis, Thymectomy","Myasthenia Gravis","Myasthenia Gravis, MuSK","AChR Myasthenia Gravis","AChR-Ab Seropositive Generalized Myasthenia Gravis","MG","MG - Myasthenia Gravis",[42,43,44,45,46,47,48,49,50,51,52,53,54,55,56,57],"myasthenia gravis","autoimmune diseases of the nervous system","neuromuscular junction diseases","patient registries","natural history","longitudinal studies","observational study","patient-reported outcome measures","quality of life","activities of daily living","treatment patterns","medication adherence","treatment burden","healthcare utilization","disease progression","real-world data","RECRUITING","2026-08-14",{"date":61,"type":62},"2026-08-17","ACTUAL",{"date":64,"type":62},"2026-03-19",{"date":66,"type":21},"2036-03",{"name":68,"class":69},"Autoimmune Neurology Alliance","OTHER",1,{"id":72,"slug":73,"hasResults":11,"nctId":74,"briefTitle":75,"officialTitle":75,"acronym":76,"eligibilityCriteria":77,"healthyVolunteers":11,"sex":17,"minAge":18,"maxAge":4,"enrollmentInfo":78,"targetDuration":80,"studyType":23,"phases":4,"briefSummary":81,"conditions":82,"keywords":88,"overallStatus":58,"whyStopped":4,"lastUpdateSubmitDate":93,"lastUpdatePostDateStruct":94,"startDateStruct":96,"completionDateStruct":98,"leadSponsor":100,"locationsCount":70},"100563559","myasthenia-gravis-foundation-of-america-global-mg-patient-registry-100563559","NCT06617741","Myasthenia Gravis Foundation of America Global MG Patient Registry","MGFAPR","Inclusion Criteria:\n\n* age over 18\n* positive MG diagnosis\n\nExclusion Criteria:\n\n* age under 18\n* misdiagnosed with MG",{"count":79,"type":21},3800,"15 Years","The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are:\n\n* How and when are people with MG diagnosed?\n* What are the most common symptoms associated with MG?\n* What treatments are being used to treat MG?\n* What are the impacts of MG on activities of daily living, employment and quality of life?\n* What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.",[83,84,85,29,31,32,86,87,27,28,34,35,36],"Myasthaenia Gravis","Myasthenia","Myasthenia Gravis Associated with Thymoma","Myasthenia Gravis with Exacerbation (Disorder)","Myasthenia Gravis, Adult Form",[89,90,91,92,42],"myasthenia","patient registry","MGFA","Myasthenia Gravis Foundation of America","2024-09-26",{"date":95,"type":62},"2024-09-27",{"date":97,"type":62},"2013-10-12",{"date":99,"type":21},"2029-09-19",{"name":92,"class":69}]