A Qualitative Study Investigating the Lived Experiences and Impact of Reproductive Issues in Adults With Primary Ciliary Dyskinesia

ConditionPrimary Ciliary Dyskinesia (PCD)

Trial statusRecruiting

Trial phaseNot listed

Trial typeObservational

Biological sexAll

Age18+

SponsorUniversity Hospital Southampton NHS Foundation Trust

About this trial

Study involving undertaking research interviews with adults who have primary ciliary dyskinesia in the UK about their views and experiences of fertility, pregnancy and parenthood

Eligibility criteria

This trial does not accept healthy volunteers

Qualifiers

Lives in United Kingdom

'likely' or 'confirmed' diagnosis of PCD

able and willing to sign the consent form

Disqualifiers

unwilling to participate in the study

not meeting inclusion criteria

Trial population

Adults with primary ciliary dyskinesia

Trial design

Design model

Other

Time perspective

Prospective

Treatments tested in this trial

Interview only
Other intervention
No intervention

Treatment groups

No treatment groups listed

Trial outcomes

Primary outcomes

Qualitative description of views and experiences of participants

Explored during study interview

Time frame

Explored during study interview (day 1)

Sponsors and contacts

Click on the lead sponsor to view all of their trials.

University Hospital Southampton NHS Foundation Trust

Lead sponsor

University of Southampton

Collaborator

Source ClinicalTrials.gov

Apply now