Home dialysis is encouraged in Canada and peritoneal dialysis is the most common home dialysis method. However, many patients discontinue peritoneal dialysis, often transferring to hemodialysis. Despite the frequency of this transition, little is known about its impact on patients.
Overall, the UPLIFT-PD program aims to fill this gap by studying the transition from peritoneal dialysis to hemodialysis. The specific goal of this mixed methods sub-study is to conduct a national survey to ask patients and caregivers about priorities and preferences when they anticipate a transfer from peritoneal dialysis to hemodialysis. This survey will be co-created by patient-partners and dialysis experts.
Results from this survey will then be used in other phases of UPLIFT-PD program, detailed in other registrations, which will support people facing a transition from peritoneal dialysis to hemodialysis..
Adult (≥18 years)
Patient who experienced a PD-to-HD transition in past 12 months
Patient currently receiving peritoneal dialysis
Caregiver (self-defined, including spouses, family members, or friends) of individuals meeting the above criteria
Age <18 years
Unable to provide consent
Adult patients with lived experience of peritoneal dialysis and transitions to hemodialysis, as well as caregivers of such patients, recruited from dialysis centers and patient communities across multiple centers.
Other
Prospective
Not listed
Priorities and Challenges Related to PD-to-HD Transitions
Measured using Likert-scale responses assessing perceived importance of transition-related factors (e.g. preparedness, timing of discussions, vascular access planning, psychosocial impact). Likert-scale from 0 (lowest importance) to 9 (highest importance)
Preferences for Clinical Scenarios Related to PD-to-HD Transitions
Assessed using a discrete choice experiment evaluating trade-offs between attributes such as duration on PD, risk of complications, and planned vs. unplanned HD transfer.
Perceptions of Successful Transition
Agreement with proposed definitions of successful PD-to-HD transitions based on care pathways.
Qualitative Themes Related to Transition Experiences
Analysis of open-ended responses to identity key themes and concepts.
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Ciusss de L'Est de l'Île de Montréal
Lead sponsor
Canadian Institutes of Health Research (CIHR)
Collaborator
This trial is not recruiting at the moment. You can still explore other options:
