This research study aims to evaluate the effect of a 6-month adapted physical activity program (APA) on the endurance capacities (evaluated as the maximum oxygen consumption \[VO2 peak\]) of children and adolescents with Osteogenesis Imperfecta.
Diagnosed Osteogenesis Imperfecta
Informed and written consent signed by at least one of the two holders of parental authority
Patient affiliated to a social security scheme or equivalent
Non-walking children (unable to perform the effort test)
Pregnant or breastfeeding
Participation in other interventional research
Single group
Adapted Physical Activity program
Other interventionThe Adaptated Physical Activity program consists of a Personalized Training Program adapted to each patient's condition and capacities
Change from Baseline maximum endurance capacity at 6 months
Maximum oxygen consumption (VO2 peak) during an exercise test will be measured
Change from baseline quality of life questionnaire score at 6 months
Osteogenesis Imperfecta Specific Quality of Life Questionnaire (OIQoL). Total scores are based on a 0-100 scale, where a high score represents better quality of life
Change from baseline number of steps at 6 months
6-minute walk test (6MWT) assessed by connected watch
Change from baseline Weight at 6 months
Body Mass Index
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