Aftercare of Childhood Cancer Survivors in Switzerland

ConditionsChildhood Cancer Survivorship Transition

Trial statusRecruiting

Trial phaseNot listed

Trial typeObservational

Biological sexAll

Age16+

SponsorKantonsspital Aarau

About this trial

The Aftercare of Childhood Cancer Survivors in Switzerland (ACCS) study is a multicenter cohort study designed to investigate transition of follow-up care from pediatric oncology to adult care in a prospective and longitudinal way. The investigators collect data on preferences and expectations for follow-up care and transition to adult care by questionnaires in adolescent and young adult survivors of childhood cancer.

Eligibility criteria

This trial does not accept healthy volunteers

Qualifiers

5-year survivor of childhood cancer

Diagnosis according to ICCC3 I-XII; Langerhans cell histiocytosis (LCH), Hemophagocytic lymphohistiocytosis (HLH)

Age at diagnosis <18 years

Age at study ≥16 years

Disqualifiers

Treatment only by means of surgery and without increased risk of late effects (e.g. teratoma)

<5 years after therapy of a relapse or palliative situation

Severe cognitive impairment, which makes it impossible to complete the questionnaire independently

Insufficient knowledge of the German language

Trial population

The study population consists of childhood cancer survivors, who were diagnosed in three Swiss pediatric oncology centers at age \<18 years and are ≥5-year from diagnosis and age ≥16 years at study inclusion. Additionally, survivors are at study start in follow-up care at one of the three pediatric oncology centers (group before transition) or have been transitioned to adult care not before 2014 (group after transition)

Trial design

Design model

Cohort

Time perspective

Prospective

Treatments tested in this trial

Transition model
Other intervention
Transition of follow-up care of childhood cancer survivors to adult care

Treatment groups

No treatment groups listed

Trial outcomes