The purpose of this study is to employ a mixed methods research approach combining quantitative and qualitative methods to thoroughly understand the relationships among caregiver burden, quality of life, family functioning, and family resilience of children with medical complexity (CMC). The study aims to explore the individual and social factors influencing these variables and investigate the factors impacting caregiver burden, quality of life, family functioning, and family resilience of CMC caregivers. Finally, an integrative analytical framework will be proposed. The study seeks to provide guidance and recommendations for social support for caregivers of children with medical complexity in caregiving practices, aiming to promote the development of relevant policies and services.
Must be the primary caregiver of a child with medical complexity, providing care for at least 12 months.
Aged 20 years or older.
Must be a cohabiting family member of the child and have a biological relationship with the child.
Willing to participate in the study.
Diagnosed with a mental illness by a physician.
Assessed by the researcher as lacking the reading and comprehension abilities necessary to complete the study.
The study population comprises primary caregivers of children with medical complexity (CMC)
Other
Cross-sectional
non-intervention
Other interventionnon-intervention
Caregiver Burden Inventory (CBI)
Scale: 0 to 96, with higher scores indicating greater caregiver burden. Description: This measure will assess the time dependence, developmental, physical, social, and emotional burdens experienced by caregivers of children with medical complexity.
Quality of Life [Short Form Health Survey (SF-12)]
Scale: 0 to 100 for each domain, with higher scores indicating better quality of life. Description: This measure will evaluate the physical functioning, role physical, bodily pain, general health, vitality, social functioning, role emotional, and mental health of caregivers.
Family Function (Family APGAR)
Scale: 0 to 10, with higher scores indicating better family function. Description: This measure will assess family adaptability, partnership, growth, affection, and resolve.
Family Resilience Scale
Scale: 31 to 155, with higher scores indicating greater family resilience. Description: This measure will evaluate the belief systems, organizational patterns, and communication processes of families dealing with children with medical complexity.
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