Centering Autistic Perspectives in Behavioral Intervention Discussions

Brief Engagement Poll

3-item poll indicating perceived quality ("ability to engage you as a member of our team in the meeting"), value ("Was today's meeting a good use of your time"), and contribution ("To what extent did you contribute to project-related processes") to the process, developed for autistic research partnerships by AASET

ABX Stakeholder Toolkit

Likert-type measure, with items including, "The study values the differences of contributing stakeholders," "I feel the study team has a clear understanding of stakeholders' expertise, strengths, and roles," "study stakeholders engage in open communication and demonstrate a willingness to listen to others," "My fellow stakeholder participants respect what I have to say, even when they do not agree with me." (post-engagement trust) "Participating in these activities has helped me better understand research on \[this topic\]," (sense of agency) "Individuals whose lives are most impacted by \[this topic\] are well represented," "I have decision-making authority and believe I contribute meaningfully to relevant outcomes and objectives for the study," "I feel that I have been compensated appropriately for my time and expertise as a stakeholder," "I have learned a lot from participating in these activities," "I feel I could explain the ABX study to others." (sense of buy-in)

Genetic Alliance Engagement Assessment Tool

Quantitative engagement metrics, including the degree to which "stakeholders report satisfaction in involvement in the research process and feel adequately informed about the project activities and results," and "Stakeholders report that the research is valuable to them and that they have contributed to setting and revising project priorities." as well as self-report items such as "A sense of partnership among team members and investigators has been established," "All team members are given equal opportunity to provide input," "Input from team members is incorporated into the decision-making process," and "There is clear communication about how input from team members is incorporated into decisions."

ABA Willingness Tool

Likert-type measure regarding the willingness of participants to engage in further discussions regarding ABA-related CER. To be adapted with the CAC

AAPS

1-item bipolar expanded -type self-report measure, indicating degree of pro- or anti-ABA positionality among participants. Scale endpoints will approximate, "I believe ABA should never be used with autistic people" and "All critiques of ABA are misguided, and ABA represents a uniformly useful evidence-based practice for autistic people."

AASPIRE CBPR Check In

A Likert-type measure, with items including "I feel I have the chance to say (or type) what I want to say during team meetings," "I feel like my comments are taken seriously," "I feel my opinions are valued" (sense of buy-in), and "this project is important," "I feel like this team works well together," "I find working on this project to be rewarding," "I am glad I am part of this team," "I am proud of the work we have done so far on this project" (post-engagement trust), all to be adapted with the CAC.

TREC and SEED Fidelity Tools

The Community Advisory Council-led process will yield co-development of a self-reported fidelity tool, to be completed by TREC Facilitators after each day. This tool will be used to assess the degree to which the groups adhered to the EA processes developed by the group