This mixed methods study aims to understand how factors such as ethnicity, deprivation, language, and access to healthcare affect outcomes for children admitted to paediatric intensive care (PICU).
The main questions it aims to answer are:
* Why are some children more likely to be admitted to paediatric intensive care, or to have worse outcomes once they are there, depending on their ethnicity or background? * At what points in a child's healthcare journey could earlier support or intervention make a difference?
The first part of the study will involve interviewing parents and carers of children admitted to intensive care and health care professionals working in or referring children to intensive care. The second part of the study will be an analysis of existing NHS data.
Participants will have an interview with a researcher lasting 45 minutes to an hour.
Parent or carer of a child admitted to paediatric intensive care at one of the participating sites: Great Ormond Street Hospital, Birmingham Children's Hospital, St Mary's Hospital, or Royal Manchester Children's Hospital.
Aged 18 years or over.
Able to provide informed consent.
Approached no earlier than 48 hours after the child's admission to PICU.
Individuals unable to provide informed consent.
Families of children with ongoing safeguarding concerns at the time of potential recruitment.
Families who are actively involved in a formal complaint process against the hospital at the time of recruitment.
Parents/carers approached within 48 hours of PICU admission.
1. Parents and carers of children admitted to PICU at GOSH, Birmingham Children's Hospital, St Mary's Hospital, or Royal Manchester Children's Hospital. 2. Health care professionals working in PICU or referring patients into PICU recruited from GOSH, Birmingham Children's Hospital, St Mary's Hospital, or Royal Manchester Children's Hospital.
Other
Prospective
Inverview
Other intervention45-60 minute semi structured interview with researcher
Qualitative themes describing experiences of social inequalities in paediatric critical care
This is a qualitative sub-study; there is no quantitative primary outcome measure. The measurement tool is a semi-structured interview topic guide administered to parents/carers and healthcare professionals. Data will be analysed using Framework Analysis
Quantitive study - Mortality among children admitted to paediatric intensive care
Risk of mortality in children admitted to paediatric intensive care, derived from linked PICANet, HES APC and ONS mortality data, stratified by social determinants of health to assess inequalities in mortality outcomes.
Number and demographic characteristics of participants recruited
Number of parents/carers and healthcare professionals who register to participate in interviews, and their demographic characteristics, including self-reported ethnicity and socioeconomic position (occupation of parent aged 14, and school type attended). This is collected to assess whether recruitment achieves a sample that reflects a range of ethnic and socioeconomic backgrounds, in line with the study's focus on social inequalities in paediatric critical care.
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Imperial College London
Lead sponsor
Great Ormond Street Hospital for Children NHS Foundation Trust
Collaborator
St Mary's Hospital, London
Collaborator
Birmingham Children's Hospital, United Kingdom
Collaborator
Manchester University NHS Foundation Trust
Collaborator
This trial is not recruiting at the moment. You can still explore other options:
