Clinical Trial - Analyzing Participation Experiences Of Amyotrophic Lateral Sclerosis Patients

Trial statusNot yet recruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorPower Life Sciences Inc.

About this trial

Clinical trial participation has always been substantially skewed toward certain demographic groups. However, there has been little study on whether trial qualities impact participation in either a positive or negative way. The goal of this research is to identify the characteristics that consistently restrict patients' ability to participate in or complete a trial in which they were initially interested. This data will be analyzed via a number of demographic lenses in order to find trends that could benefit future ALS sufferers.

Eligibility criteria

This trial does not accept healthy volunteers

Qualifiers

Lives in the United States

Is 18+ years old

Participant has a diagnosis of Amyotrophic Lateral Sclerosis (ALS)

Participant has enrolled in an interventional clinical for ALS (self-reported)

Disqualifiers

Inability to perform regular electronic reporting

Patient does not understand, sign, and return consent form

No diagnosis of Amyotrophic Lateral Sclerosis (ALS) confirmed

Trial population

Amyotrophic Lateral Sclerosis patients who are actively considering enrolling in an interventional clinical trial, but have not yet completed enrollment and registration.

Trial design

Design model

Case-crossover

Time perspective

Prospective

Treatments tested in this trial

Not listed

Trial groups

No trial groups listed

Trial outcomes

Primary outcomes

1

Number of patient decides to enroll in clinical trial

Time frame
3 months
2

Rate of patients who remain in clinical trial to trial completion

Time frame
12 months

Secondary outcomes

Other outcomes

Locations

This trial has no locations.

Sponsors and contacts

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This trial is not recruiting at the moment. You can still explore other options: