About this trial
Clinical trial participation has always been substantially skewed toward certain demographic groups. However, there has been little study on whether trial qualities impact participation in either a positive or negative way. The goal of this research is to identify the characteristics that consistently restrict patients' ability to participate in or complete a trial in which they were initially interested. This data will be analyzed via a number of demographic lenses in order to find trends that could benefit future ALS sufferers.
Eligibility criteria
Qualifiers
Lives in the United States
Is 18+ years old
Participant has a diagnosis of Amyotrophic Lateral Sclerosis (ALS)
Participant has enrolled in an interventional clinical for ALS (self-reported)
Disqualifiers
Inability to perform regular electronic reporting
Patient does not understand, sign, and return consent form
No diagnosis of Amyotrophic Lateral Sclerosis (ALS) confirmed
Trial design
Treatments tested in this trial
- Not listed