The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share their heath information over several years and participate in research. The COPD PPRN has built an online platform to allow volunteers to enroll electronically, complete surveys, be contacted about studies they qualify for and become connected to COPD resources. The goal of the registry is to speed research to find better treatments for COPD and ultimately a cure.
COPD diagnosis
Current or former smoker
Family history of respiratory disease
Symptomatic of respiratory disease
Non-English speaking
English speaking individuals who are over the age of 18 and have a diagnosis of COPD or fall into one of the following categories that put's them at risk - current or former smoker, environmental/occupational exposure, family history of respiratory disease or symptomatic of respiratory disease.
Cohort
Other
Patient Reported Outcomes
Other interventionPatient Reported Outcome Measurement Information System-29 (PROMIS-29)
COPD Assessment Test (CAT)
Modified Medical Research Council (MMRC) Dyspnea Scale
Charlson Comorbidity Index (CCI)
Click on the lead sponsor to view all of their trials.
COPD Foundation
Lead sponsor
Kaiser Foundation Hospitals, Center for Health Research
Collaborator
