Culturally Adapting an Intervention to Increase Genetic Testing in African American Cancer Survivors

Uptake of genetic counseling and genetic testing

One item question will ask whether participants have participated in genetic counseling and genetic testing (Yes or No)

Intention to undergo genetic counseling and testing

This 2-item measure assesses participant's intentions to undergo genetic counseling and testing (Yes or No)

Sharing Your Results

This author-developed 3-item measure assesses the extent to which participants shared information from (1) the video, (2) their counseling appointment, or (3) their testing results with their family. Each item is scored individually as binary (Yes or No) with yes=sharing and no=did not share.

Major Experiences of Discrimination

This 18-item measure assesses whether participants have had 9 major experiences of discrimination (e.g., getting employment, housing, medical care) happen to them (responses: 1=once, 2=2-3 times, 3=4+ times, or 0=never happened). Responses (range 0-27) are summed into an Experiences score with higher score = greater experiences of racism. If participants who respond (1, 2, 3), for any item, they are asked to report the last time this happened (1=past week, 2=past month, 3=past year, 4=more than a year ago). These responses are averaged to create a Frequency score (range 1-4), which is multiplied by the Experiences scores to obtain a Severity score (range 9-108) with higher scores = higher severity of major experiences of discrimination experiences. The Experiences and Severity scores will be assessed as moderators of change in the primary outcomes.

Everyday Experiences of Discrimination

This 5-item scale measure assesses experience of discrimination that participants might experience on daily basis (e.g., poor service in a restaurant, getting harassed). Responses are (1=almost everyday, 2=at least once a week, 3=a few times a month, 4=a few times a year, 5=less than once a year, 6=never). Responses (range 5-30) are summed, and all items are when reverse scored, higher scores = greater experiences of everyday discrimination. This measure will be assessed as a moderator of change in the primary outcomes. For item with a score of 1-4, participants are asked to name the main reason for the discrimination (examples: ancestry or national origin, gender, race, age, religion, weight). This item is described qualitatively.

Age at enrollment (measured in years)

Covariate of the primary outcome

PROMIS (Patient-Reported Outcomes Measurement Information System) Anxiety Scale

This 8-item measure of anxiety will be used as a covariate of the primary outcome. Responses are (1=never, 2=rarely, 3=sometimes, 4=often, 5=always). Higher scores (mean range (1-5)=higher anxiety.

PROMIS (Patient-Reported Outcomes Measurement Information System) Depression Scale

This 8-item measure of depression will be used as a covariate of the primary outcome. This 8-item measure of anxiety will be used as a covariate of the primary outcome. Responses are (1=never, 2=rarely, 3=sometimes, 4=often, 5=always). Higher scores (mean range=1-5)=higher depression.

Education (covariate of the primary outcome)

Categorical assessment of education. Descriptive responses are (1=Employed full time (including self-employed); 2=Employed part time; (including self-employed); 3=Homemaker; 4=Unemployed; 5=Retired; 6=Disability; 7=Other (specify); 8=Employed; not otherwise specified)