Dissemination of the Donor Application: Utilizing Social Media to Identify Potential Live Organ Donors
Trial statusRecruiting
Trial phaseNot applicable
Trial typeInterventional
Biological sexAll
Age18+
SponsorJohns Hopkins University
About this trial
This study utilizes a web-based application to help patients on the organ transplant waitlist communicate patient's need for a living donor via social media and provide interested potential donors the opportunity to engage with the evaluation process.
Eligibility criteria
This trial accepts healthy volunteersQualifiers
At least 18 years of age
On the kidney-only or liver-only transplant waiting list at a collaborating center
Disqualifiers
Younger than 18 years of age
Not on the kidney or liver transplant waiting list
On multiple organ transplant waiting lists
Trial design
Design model
Single group
Treatments tested in this trial
The Donor App
Other interventionThe Donor app is a web-based application that helps transplant candidates tell the candidate's story via social media in the hopes of identifying an appropriate living donor. Sample stories created using the Donor App can be found at www.thedonorapp.com.
Treatment groups
1,000 Participants
are divided into 1 treatment groupGroup A: The Donor AppExperimental treatment 1 intervention
Trial outcomes
Primary outcomes
1
Potential donors identified
Number of potential live donors that come forward to the transplant center on behalf of the participant.
Time frame
Up to 5 years2
Live donor transplantation
Number of participants that receive a live donor transplant.
Time frame
Up to 5 yearsSecondary outcomes
1
App utilization as assessed by number of participants with story completion and posting in the donor app
The extent of a participants story completion and posting will be recorded internally by the Donor App. The number of participants that complete stories and post will be counted to assess app utilization.
Time frame
Up to 5 years2
The Donor App Implementation
Success of the Donor App across multiple institutions will be tracked by the number of participants enrolled and invited to use the app at each institution.
Time frame
Up to 5 yearsSponsors and contacts
Click on the lead sponsor to view all of their trials.
Johns Hopkins University
Lead sponsor
MaineHealth
Collaborator
Washington University School of Medicine
Collaborator
Scripps Health
Collaborator
Yale University
Collaborator
Rush University Medical Center
Collaborator
Source ClinicalTrials.gov