EULAR Impact of Rheumatic and Musculoskeletal Diseases Survey
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorEuropean Alliance of Associations in Rheumatology
About this trial
The EULAR Impact of RMDs Survey collects first-hand information about the impact of rheumatic and musculoskeletal diseases (RMDs) among patients across and beyond Europe. Through periodic questionnaires, patients will provide information about their healthcare situation, and how the disease affects their social and occupational lives. This data will be an important resource for researchers, healthcare professionals, and patients alike, providing valuable insights into the burden of disease and helping improve the overall care for people living with these conditions.
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
18-year-old at time of baseline survey
Living in a EULAR country at time of baseline survey
Diagnosed with at least one RMD
Valid personal e-mail address
Disqualifiers
none
Trial population
\- adults with at least 1 RMD
Trial design
Design model
Cohort
Time perspective
Prospective
Treatments tested in this trial
Survey
Other interventiononline survey for participants
Treatment groups
1,000 Participants
are divided into 1 treatment groupGroup A: Survey1 intervention
Trial outcomes
Primary outcomes
1
General population description - country
country of residence
Time frame
every 6 months for up to 5 years2
General population description - diagnosis
diagnosis (name of the disease)
Time frame
every 6 months for up to 5 years3
General population description
year of birth
Time frame
every 6 months for up to 5 yearsSecondary outcomes
1
Diagnosis history - physician treating the RMD
Primary physician specialty treating the patient
Time frame
every 6 months for up to 5 years2
Diagnosis history - outpatient care history
number of medical appointments for the past 6 months
Time frame
every 6 months for up to 5 years3
Diagnosis history - timeline
waiting time for medical appointments and time spent in medical appointments
Time frame
every 6 months for up to 5 years4
Diagnosis history - Inpatient care
number of days of hospitalization during the past 6 months.
Time frame
every 6 months for up to 5 yearsSponsors and contacts
Click on the lead sponsor to view all of their trials.
Source ClinicalTrials.gov