This study aims to evaluate how sarcoma-specific educational videos improve patients' knowledge of their disease and treatment options before their first clinic appointment.
Participants will watch four educational videos before their first appointment with a medical oncologist. Participants will be asked to complete surveys to assess their understanding of sarcoma and its treatment options before and after their first medical oncology clinic appointment.
Signed written and voluntary informed consent.
Have histologically documented advanced metastatic sarcoma, or is a caregiver of a patient with histologically documented advanced metastatic sarcoma.
Age ≥ 18 years.
Have not received any previous systemic treatment for sarcoma, or is a caregiver of a sarcoma patient who has not received any previous systemic treatment for sarcoma.
Inability to provide informed consent.
Previously seen by a medical oncologist for their sarcoma.
Parallel
Educational videos
Other interventionParticipants will be provided with four educational videos in clinic prior to their initial medical oncology consult.
Standard of Care
Other interventionParticipants in the control arm will be provided with the educational videos after their consult with the medical oncologist.
Assess differences in patients' and caregivers' knowledge and perceptions of sarcoma and its treatment before and after educational intervention
Evaluate the changes in global responses between baseline surveys and post educational intervention surveys.
Assess understandability and actionability of sarcoma educational videos.
The Patient Education Materials Assessment Tool (PEMAT) for Audiovisual Materials will be used to assess the video's understandability and actionability. The higher the score (\>80%), the more understandable or actionable the material.
Assess understandability and actionability of sarcoma educational videos.
The Suitability Assessment of Materials (SAM) will be used for evaluation of health-related information for adults to objectively assess the suitability of these educational materials for sarcoma patients.
Assess patient's and caregivers' satisfaction with the educational videos
Based on responses from a post-educational intervention survey. The scores will be measured using a Likert Scale (1-5), with higher scores indicating greater satisfaction.
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