The goal of this observational study is to collect structured data about diagnosis, treatment and follow-up of rare and highly complex neoplasms.
The study has a rerospective part that will consist in gathering data on patients accessing IRCCS Azienda Ospedaliero-Universitaria di Bologna Policlinico di S. Orsola from 01/01/2000 to 28/09/2017 and a prospective one ranging from 29/09/2017 to 31/12/2025.
patients with histologic diagnosis of rare or highly complex malignant neoplasm
informed consent
none
Consecutive patients over 18 years of age with a diagnosis of histologically proven rare or highly complex malignant tumour
Cohort
Other
diagnosis, surgery, drugs for rare neoplasms
Other interventiondiagnostic and surgical procedures, drugs (pharmacological active substance, dose, regimen)
Incidence of different malignant rare neoplasms
Description of types of tumours
Response rate (RR)
Response rate to different treatments (surgery, drugs)
Local recurrence rate
Incidence of local recurrence
Progression-free survival (PFS)
Progression-free survival (PFS) assessed for different types of rare malignant neoplasms
Overall survival (OS)
OS assessed for different types of rare malignant neoplasms
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