This trial evaluates whether a network of peer genetic coaches is useful for addressing disparities in genetic testing and screening among African American men with prostate cancer that has spread from where it first started (primary site) to other places in the body (metastatic). While genetic testing has become central to prostate cancer care, African American men are less likely seek testing due to lack of awareness, cultural beliefs, financial limitations, fear of discrimination, and mistrust in the healthcare system. A network of peer genetic coaches may help address barriers, beliefs, and needs of African American men in the community and provide navigation to increase engagement in genetic testing.
AIM 1: Are 18 years old or older
AIM 1: Are able to read and speak English comfortably
AIM 1: Men who have experience with both prostate cancer (PCA) and genetic counseling and testing will be a priority for training, as well as men who have considerable peer education or navigation experience
AIM 2: Are 18 years old or older
Patients that do not meet the inclusion criteria
Children under the age of 18
Anyone who has trouble understanding the consent or with significant anxiety detected during the consent process
Men who have experience with both prostate cancer (PCA) and genetic counseling and testing, as well as peer education or navigation experience. African American men with a history of prostate cancer or with a strong family history of prostate cancer, breast cancer, ovarian cancer, pancreatic cancer, colorectal cancer, uterine cancer, renal cancer, urothelial cancer, or upper bowel cancer.
Cohort
Prospective
Training and Education
BehavioralUndergo training and education
Educational Intervention
Other interventionReceive educational booklet
Discussion
Procedure/SurgeryAttend discussion with peer genetic coach
Number of inquiries to the central number (feasibility)
Percent of callers screened and eligible to participate (feasibility)
Percent of eligible callers who enroll in the study (feasibility)
Percent who complete the endpoint assessment (feasibility)
Change in decisional conflict for genetic counseling
Reported with mean and standard deviation.
Change in acceptability/attitude toward genetic counseling and testing
Reported with mean and standard deviation.
Change of genetics knowledge
Reported with mean and standard deviation
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