This study aims to explore parents' experiences and emotional burdens related to their newborn's hospital stay using an online survey. Our target population consists of parents of newborns born preterm, with low birthweight, or critically ill. Particularly the presence of infant- and family-centred developmental care (IFCDC) principles as well as support through political framework conditions will be investigated.
None
Other family members than parents/(primary) caregivers
Parents of newborns that did not receive special/intensive care starting within the first week of life
Parents or caregivers of infants born before 1 January 2023
Persons with insufficient proficiency of one of the languages of the questionnaire
Parent or caregiver of a newborn infant born on January 1, 2023, or thereafter, who received/is receiving special/intensive care starting within the first week of life such as oxygen therapy or other respiratory support, incubator treatment, intravenous infusions, treatment of (suspected) sepsis, pneumonia, necrotising enterocolitis, malformations, jaundice, nutritional/feeding problems, hypoglycemia, etc.
Cohort
Retrospective
N/A, no intervention, participation in survey
Other interventionN/A, no intervention, participation in survey
Infant Family-Centered Developmental Care principles
The implementation of IFCDC principles will be measured as the percentage of infants receiving specific care, such as skin-to-skin contact, receiving breastfeeding support, access of parents/caregivers to the neonate, involvement in daily care procedures etc.
Social/Financial/Political Support (Quantitative)
This section will include approximately 10 questions assessing quantitative data on support received by the mother/parents, such as support to access of care, financial compensation for additional expenses (transportation to the hospital, reimbursement for sleeping facilities), social/political support, such as maternity leave etc. The final outcome still depends on the expert decision.
Social/Financial/Political Support (Qualitative)
Subjective qualitative data on support received by the mother/parents, such as support to access of care, financial compensation for additional expenses, social/political support, such as maternity leave etc. indicated by participants via open text fields.
Participant characteristics
Data on Participant characteristics will be collected (such as marital status, parental education etc., and infant characteristics to analyse the influence of these data on the availability of care according the IFCDC principles and describe the study sample.
Questionnaire pre-testing (quantitative)
Quantitative evaluation data of the pre-testing of the questionnaire related to the understandability of questions, utilisation of lay language, appropriateness of selected questions.
Single-Country evaluation of IFCDC implementation
The level IFCDC implementation will be analysed per country. Inter-country comparison will be performed to derive recommendations for action.
Single-Country evaluation on the availability of supportive political measures
The availability of supportive political measures will be analysed per country. Inter-country comparison will be performed to derive recommendations for action.
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