About this trial
This project aims to improve outpatient departments by working with patients and staff to make these spaces more inclusive for people with sensory challenges (it focuses on people with nerve tumour conditions as they are more likely to have sensory challenges). The project uses a well-established method called experience-based co-design (EBCD), which supports patients and staff to work together. It will run over 4 years.
Eligibility criteria
This trial accepts healthy volunteersQualifiers
Patients aged 16 or over who attend outpatient appointments coordinated by the Guy's and St Thomas' NHS Foundation Trust NF team
Patients who identify as having sensory challenges
Carers and relatives accompanying patients
Staff providing care for people with nerve tumour predisposition conditions at Guy's and St Thomas' NHS Foundation Trust in any job role or banding.
Disqualifiers
Individuals who are unable to provide explicit informed consent.
Paediatric patients under 16 years of age.
Temporary staff who have spent less than one shift in their role.
Trial population
Participants will be recruited from the Neurofibromatosis Department at Guy's Hospital, part of Guy's and St Thomas' NHS Foundation Trust, a nationally commissioned centre for NF1 and NF2.
Trial design
Other
Prospective
Treatments tested in this trial
Qualitative data collection activities
BehavioralParticipants will take part in qualitative data collection activities including ethnographic observations, walking interviews, focus groups and co-design workshops. These activities are used to explore experiences of outpatient departments and collaboratively identify priorities for improvement.
Treatment groups
Trial outcomes
Primary outcomes
Qualitative themes describing patient, carer and staff experiences of outpatient departments (identified through qualitative thematic analysis of interview, observation and workshop data)
Interview transcripts, ethnographic field notes, walking-interview recordings, focus group and co-design workshop discussions will be analysed using qualitative thematic analysis to generate themes describing patient, carer and staff experiences of outpatient departments. These themes will include barriers and facilitators to accessing outpatient environments, priorities for improvement, and co-designed solutions.
Sponsors and contacts
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King's College London
Lead sponsor
Guy's and St Thomas' NHS Foundation Trust
Collaborator
This trial is not recruiting at the moment. You can still explore other options: