This project aims to document and analyse - with a three-fold anthropological, psychosocial and economical approach - the consequences of the geographical distance from mainland France on the alloSCT on both patients, their caregivers and the healthcare system. It is organised in 3 working packages (WP).
patients diagnosed with hematological malignancy (myeloid acute leukemia, lymphoid acute leukemia, non-hodgkin lymphoma, Hodgkin disease, or myelodysplasic syndrome
candidate to an allogeneic hematopoietic stem cell transplantation in mainland France ;
Residing in Reunion Island
Age >18 year old;
Opposition to participation and collection of their data
Person deprived of liberty by judicial or administrative decision, and person subject to legal protection (guardianship or curators)
Patients diagnosed with myeloid acute leukemia, lymphoid acute leukemia, non-hodgkin lymphoma, Hodgkin disease, or myelodysplasic syndrome candidate to an allogeneic hematopoietic stem cell transplantation in mainland
Cohort
Prospective
questionnaire
Other intervention* quality of life score: FACT-BMT * decisional conflict scale * Discreet Choice Experiment questionnaire
Quality of life Functional Assessment of Cancer Therapy - Bone Marrow Transplantation questionnaire. (FACT-BMT questionnaire)
satisfaction with decision questionnaire
decision regret scale
fear of recurrence questionnaire
preferences of patients questionnaire
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Centre Hospitalier Universitaire de la Réunion
Lead sponsor
Institut Paoli-Calmettes
Collaborator
This trial is not recruiting at the moment. You can still explore other options:
