Earlier work explored barriers and facilitators to accessing prostate cancer screening, particularly in underserved communities, and provided valuable insights to build upon.
This study will explore perspectives on how genetic risk for prostate cancer is explained and understood through in-depth interviews with members of underserved communities. Findings from this work, alongside earlier results, will be used to co-design clear and accessible digital educational resources in collaboration with community members and relevant charities.
Participation in cancer screening programmes in the UK varies, with differences linked to socioeconomic status, ethnicity and health literacy. Similar inequalities are seen in access to prostate cancer genetics services, indicating a need for improved engagement.
Successful integration of genetics into prostate cancer care requires clear and inclusive information about genetic testing processes, possible outcomes and interpretation of results. Currently, there are limited resources explaining genetic risk for prostate cancer in an accessible way.
Co-production with representatives from underserved communities will ensure that educational materials are understandable, relevant and acceptable to all.
Men and people with prostates age 18 and above
Those who belong to the three underserved groups; Black African and Black Caribbean Ancestry, transgender and non-binary people with a prostate and those with reduced access to healthcare
We allow intersectionality within reason and will narratively describe any instances of these in the writeup of findings
Those who are able to freely consent to inclusion
To avoid exhaustion, we will only allow participation in two interview or focus groups per individual for the entirety of the study
Those without capacity to consent to interview (capacity is assumed unless there is good reason to believe otherwise)
Men and people with prostates from the following three communities: * Black African and Black Caribbean * Transgender women and non-binary people with prostates * Reduced access to healthcare
Other
Prospective
Surveys
Other interventionUp to 30 surveys with 10 of these individuals undergoing short interviews to assess the improvement of their understanding around prostate cancer
Semi-structured interviews and focus groups
Other interventionUp to 60 total semi-structured interviews (up to 20 per underserved group) to assess barriers and facilitators to prostate cancer screening and how they would like information to improve their understanding to be presented.
Evaluation of educational materials, demonstrating that users have an increase in understanding or prostate cancer risk and symptoms as well as genetic risk.
Using surveys (before and after use of resources) and interviews to measure improvement in understanding in individuals without experience of prostate cancer.
Increased representation from underserved groups in the referrals to our genetic research studies.
Using demographic data from referrals via our website to our genetic research studies
Qualitative data such as hits to the webpage and scroll depth and how many have signed up to the genetic research studies via the website.
This is a short term measure of how effective and engaging the resources are.
Improved representation of underrepresented groups in our genetic risk studies.
Recruits to our genetic research studies will be screened for demographics.
Reduced barriers to prostate cancer screening and participation in genetic research faced by underrepresented communities
These resources will be distributed by the community champions who we have co-designed them with. These community champions have social media networks with a strong following in their respective community and they are trusted by community members. Therefore, the resources and the webpage will have a far reach within the community to encourage engagement with empowering information and to promote prostate cancer screening and participation with our genetic risk studies.
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This trial is not recruiting at the moment. You can still explore other options:
