IN-TALK: Co-producing a Hospice Intimacy Support Toolkit in England
Trial statusNot yet recruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorDorothy House Hospice
About this trial
People receiving hospice care may experience concerns about intimacy, closeness and physical affection that can affect their quality of life and wellbeing. However, healthcare professionals often report feeling uncertain about how to initiate or respond to conversations about intimacy needs. This can result in unmet needs and missed opportunities to provide holistic, person-centred care.
The aim of the IN-TALK study is to co-produce a hospice intimacy support toolkit to support healthcare professionals in initiating and responding to conversations about intimacy needs with people receiving hospice care in England.
This prospective mixed methods observational study uses Experience-Based Co-Design (EBCD) as its co-production methodology to develop a hospice intimacy support toolkit. Findings from the surveys will inform a series of co-production workshops involving hospice service users and healthcare professionals. Together, participants will co-produce the content and design of a hospice intimacy support toolkit to support person-centred care in hospice services across England.
Eligibility criteria
This trial accepts healthy volunteersQualifiers
None
Disqualifiers
None
Trial population
The study population comprises adult hospice service users (including patients, partners, loved ones and bereaved people receiving palliative and end of life care or support services from hospices in England) and registered and non-registered healthcare professionals working in hospices in England.
Trial design
Design model
Other
Time perspective
Cross-sectional
Treatments tested in this trial
Experience-Based Co-Design (EBCD) workshops
BehavioralExperience-Based Co-Design (EBCD) workshops are used as a co-production research method to collaboratively develop a hospice intimacy support toolkit with hospice service users and healthcare professionals. The workshops are part of the research methodology and are not a therapeutic or clinical intervention.
Treatment groups
794 Participants
are divided into 2 treatment groupsGroup A: Hospice service users1 intervention
Group B: Healthcare professionals1 intervention
Trial outcomes
Primary outcomes
1
Priorities for an intimacy support toolkit
Identification of priorities for the content, format and implementation of a hospice intimacy support toolkit through analysis of survey findings and Experience-Based Co-Design (EBCD) workshop discussions involving hospice service users and healthcare professionals.
Time frame
Up to 24 monthsSecondary outcomes
1
Hospice service users' intimacy support needs and priorities
Self-reported intimacy support needs, preferred sources of support, and priorities for hospice intimacy support identified through an e-survey of hospice service users.
Time frame
During the cross-sectional survey data collection period (anticipated November 2026 to March 2027).2
Healthcare professionals' confidence and educational needs
Self-reported confidence, perceived barriers and facilitators, and education and training needs relating to conversations about intimacy needs identified through an e-survey of hospice healthcare professionals.
Time frame
During the cross-sectional survey data collection period (anticipated April 2027 to September 2027).Locations
Sponsors and contacts
Click on the lead sponsor to view all of their trials.
Dorothy House Hospice
Lead sponsor
St Oswald's Hospice
Collaborator
University of the West of England, Bristol
Collaborator
National Institute for Health and Care Research
Collaborator
Source ClinicalTrials.gov
This trial is not recruiting at the moment. You can still explore other options: