Myelomeningocele is a malformation of the spine and spinal cord, generally diagnosed prenatally, and responsible for a complex disability for the unborn child. In the event of continued pregnancy, in utero surgery can be performed to improve the prognosis of the children. This fetal therapy does not allow a cure and induces risks for the fetus, and for the mother, both during surgery and for her obstetric future.
Currently, few studies have focused on the factors influencing the choice to resort to in utero surgery and the experience of patients and co-parents before and after this intervention. No qualitative study on the subject has been published to date.
Mothers and adult co-parents of the child with MMC operated in utero, having signed informed consent. If both members of the couple have agreed to participate, they will be received separately.
Mother who had fetal surgery for in utero repair of a fetal myelomeningocele by laparotomy and hysterotomy aged 18 years or older at the time of surgery, and whose child affected by the surgery is at least 6 months old
Speaking French
Not presenting a severe psychiatric disorder altering the relationship with reality
Patient under guardianship or curatorship, deprived of liberty or unable to sign informed consent to participate in the study
Patient under State Medical Aid
Single group
Semi-structured interviews with a psychologist
Other interventionSemi-directed interviews using an interview guide on different themes
Studying the experience of couples who have chosen fetal surgery
Semi-structured interviews with a psychologist
Investigate the decision-making factors that contributed to the choice of prenatal surgery
Semi-structured interviews with a psychologist
Evaluate the quality of the information that couples received regarding the three possibilities proposed when faced with a prenatal diagnosis of myelomeningocele
Semi-structured interviews with a psychologist
Click on the lead sponsor to view all of their trials.
