Institutional Registry of Haemorrhagic Hereditary Telangiectasia
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorHospital Italiano de Buenos Aires
About this trial
The purpose of this study is to create an institutional and population-based registry of Haemorrhagic Hereditary Telangiectasia with a prospective survey based on epidemiological data, risk factors, diagnosis, prognosis, treatment, monitoring and survival.
This study will also describe the occurrence of Haemorrhagic Hereditary Telangiectasia in the population of HIBA in the Central Hospital, as well as the characteristics of clinical presentation and evolution.
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
Patients with HHT defined.
Followed in Unidad HHT of Hospital Italiano de Buenos Aires.
Disqualifiers
None
Trial population
Patients with Haemorrhagic Hereditary Telangiectasia
Trial design
Design model
Cohort
Time perspective
Prospective
Treatments tested in this trial
Not listed
Trial groups
No trial groups listed
Trial outcomes
Primary outcomes
1
morbidity
Control visit every three month
Time frame
1 yearLocations
1Map coordinates are unavailable for these locations. Locations are shown below instead.
Hospital Italiano de Buenos AiresRecruiting1081, Buenos Aires, Buenos Aires
Argentina
ArgentinaSponsors and contacts
Click on the lead sponsor to view all of their trials.
Source ClinicalTrials.gov