Integration of Palliative Care in Pediatric Onco-hematology
Trial statusNot yet recruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorNantes University Hospital
About this trial
PALONCOPED is a multicentre, interregional, observational and qualitative study aiming to better understand the early integration of palliative care in children with cancer. This study compares the practices, representations and temporalities of integration according to the type of cancer, in particular between hematological malignancies and solid tumors. The study seeks to identify the obstacles and levers encountered by professionals in pediatric onco-haematology and pediatric palliative care resource teams. It will be conducted in the hospitals of Nantes, Angers and Tours, based on about 45 semi-structured individual interviews with healthcare professionals. The data will be analyzed according to a reflexive thematic analysis, supplemented if relevant by a lexical analysis. The project aims to identify ways to improve for organizational and relational improvement, to strengthen collaboration between teams, and to promote earlier, coordinated care pathways adapted to children and their families.
Eligibility criteria
This trial accepts healthy volunteersQualifiers
Healthcare professional (doctor with a thesis that has validated his DES, qualified nurse or puériculturist, qualified childcare assistant or nursing assistant, qualified psychologist, qualified physiotherapist/occupational therapist) practicing in pediatric onco-hematology or within the Pediatric Palliative Support Care Team of three university hospital centers: Nantes, Angers, and Tours., with regular exercise for at least 3 months.
Having been involved in supporting a child in a palliative situation in the last 9 months.
Agreement of professionals to participate in the study, to record and transcribe interviews.
Disqualifiers
None
Trial population
We will focus on health professionals working in pediatric onco-hematology services and within the Pediatric Palliative Support Care Team. Participation in the study will be offered to professionals from targeted services by the research team directly in the services via both information by email, a poster in the break rooms and a project presentation meeting.
Trial design
Design model
Other
Time perspective
Prospective
Treatments tested in this trial
PALONCOPED semi-structured interview
Other interventionOnly one semi-structured interview will be conducted per participant. It is estimated that the average duration of interviews is 45 minutes (given for information purposes to allow participants to anticipate the time needed for this interview). Individual interviews will be conducted by 1 researcher in Psychology. The researcher is trained in qualitative medicine and semi-structured interviews. He has extensive experience in this field.
Treatment groups
45 Participants
are divided into 1 treatment groupGroup A: PALONCOPED Study population1 intervention
Trial outcomes
Primary outcomes
1
Identify the barriers and levers for the early integration of palliative care into pediatric oncology-hematology care, depending on the type of pathology (malignant blood diseases versus so-lide tumors)
Time frame
Inclusion (Day 0)Locations
Sponsors and contacts
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Nantes University Hospital
Lead sponsor
Association CASSANDRA
Collaborator
Source ClinicalTrials.gov
This trial is not recruiting at the moment. You can still explore other options: