Health TrialsbyHealthPanel

Intervention to Collect and Utilize Sexual Orientation and Gender Identity (SOGI) Information in Hospice

ConditionsSexual and Gender MinoritiesHospiceAlzheimer's Disease and Related Dementias
Trial statusRecruiting
Trial phaseNot applicable
Trial typeInterventional
Biological sexAll
Age18+
SponsorUniversity of Colorado, Denver

About this trial

Older sexual and gender minority (SGM) patients are at risk for receiving inequitable end-of-life care; those with Alzheimer's disease and related dementias (ADRD) are at particularly high risk. Failure to collect and integrate sexual orientation and gender identity (SOGI) data to identify patients' informal support systems may have adverse health consequences for SGM older adults, particularly for those dependent on informal caregivers to provide in-home support and assist with activities of daily living. The goal of this K01 is develop a novel training for hospice staff in person-centered communication that includes SOGI data collection to promote authentic end-of-life care for SGM patients and their caregivers.

Eligibility criteria

This trial accepts healthy volunteers

Qualifiers

English speaking

18 years and above

Disqualifiers

None

Trial design

Design model

Single group

Treatments tested in this trial

  • SGM Communication Intervention

    Behavioral

    Evaluate the feasibility and acceptability of the SGM communication intervention by hospice staff. I will pilot test the training with hospice staff to refine the content and delivery of the training. Outcomes in the pilot clinical trial will include feasibility, acceptability, and staff satisfaction with training.

Treatment groups

80 Participants
are divided into 1 treatment group
Group A: SGM Communication InterventionOther 1 intervention

Trial outcomes

Primary outcomes

1

Barriers and facilitators to communicating with SGM older adults and perceptions and preferences for asking/disclosing SOGI

Evaluating barriers and facilitators to creating an affirming environment where SGM patients and their caregiver feel included and safe to disclose; perceptions and preferences for asking for/disclosing SOGI.

Time frame
Years 1-2
2

Content of training

Iteratively develop content areas with a focus on facilitating conversations with patients who are different than you.

Time frame
Years 2-3
3

Delivery of content

Determine acceptable, replicable, and scalability of content.

Time frame
Year 3-4
4

Feasibility and assessment of training

Evaluate feasibility of training intervention through simulation with standardized patients and hospice staff. Including evaluating content and delivery of the training and assess delivery of training, feasibility, comfort and confidence the training, incorporation into practice, and evaluation of content.

Time frame
Year 5

Secondary outcomes

1

Sources of bias and stigma

Identify sources of stigma (anticipated, internalized, and experienced) and sources of bias (e.g. community, hospice staff, culture, policies).

Time frame
Years 1-2
2

Ongoing engagement around SOGI-informed care

Evaluate means for ongoing engagement of the SGM community for ongoing, authentic, training delivery.

Time frame
Years 2-3
3

Accessibility

Evaluate accessibility of training intervention ussing simulation with standardized patients and hospice staff, pilot test the training to refine the content and delivery of the training and assess accessibility and satisfaction with training.

Time frame
Years 3-5

Other outcomes

Sponsors and contacts

Click on the lead sponsor to view all of their trials.

University of Colorado, Denver

Lead sponsor

Source ClinicalTrials.gov
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