The iParent2Parent (iP2P) program is a new, innovative virtual mentorship program that will connect parents one-to-one with other parents of pediatric solid organ transplant (SOT) recipients who are trained to offer vital peer support and mentorship. Parents of children who received a SOT at The Hospital for Sick Children will be invited to participate as mentors and mentees (randomized into the iP2P or control group). The iP2P program can decrease feelings of isolation, improve mental health and have a long-term positive impact on patient health. This research will increase our understanding of one-to-one peer support and leverage eHealth technologies to improve the access to and acceptability of parent peer support interventions.
Parent of a patient under 18 years of age who received a solid organ transplant and is at least two months post-transplant,
Access to a device (e.g., smart phone, tablet, computer) capable of using free WhatsApp software, and
English-speaking.
Parent of a patient under 21 years of age who received a solid organ transplant and is at least one year post-transplant,
Non-English speaking.
Parallel
iParent2Parent Program
BehavioraliParent2Parent is an online peer support mentorship program that is based on the iPeer2Peer online peer support mentorship program, which has been established in multiple chronic disease populations as a self-management intervention, including in chronic pain and juvenile idiopathic arthritis populations. The iParent2Parent program connect parents one-to-one with other parents of pediatric solid organ transplant (SOT) recipients who are trained to offer vital peer support and mentorship.
Recruitment rates and withdrawal rates
How many participants were recruited and have withdrawn from the program on average over time.
Adherence with the iParent2Parent program
When the participant completes 10 audio or video calls over 12 weeks and 100% when all online outcome measures completed.
Acceptability (Mentees)
Whether the innovation is agreeable, palatable or satisfactory. Measured via semi-structured interview or focus group.
Acceptability (Mentors)
Whether the innovation is agreeable, palatable or satisfactory. Measured via semi-structured interview or focus group.
Parenting stress (Mentees and Mentors)
Parental Stress Scale; 18-item questionnaire. Each question is scored on a scale from 1 to 5, with scores ranging from 18 to 90. An overall higher score means a worse outcome.
Psychological distress (Mentees and Mentors)
General Anxiety Disorder-7; 7-item questionnaire. Each question is scored on a scale from 0 to 3, with scores ranging from 0 to 21. An overall higher score means a worse outcome.
Psychological distress (Mentees and Mentors)
Patient Health Questionnaire Depression Scale; 8-item questionnaire. Each question is scored on a scale from 0 to 3, with scores ranging from 0 to 24. An overall higher score means a worse outcome.
Perceived social support (Mentees and Mentors)
Short form version 2.0 of the PROMIS battery for: Social Isolation; 6-item questionnaire. Each question is scored on a scale from 1 to 5 and generates a T-score. An overall higher score means a worse outcome.
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