About this trial
The older Alaska Native/American Indian (ANAI) population is increasing at twice the rate of the general population with a higher burden of serious illness. Older ANAI adults with serious illness are half as likely to have advance directives (AD), indicating a need for improved access to and utilization of advance care planning (ACP) to ensure that medical care aligns with the values, goals, and preferences of ANAI patients and their families throughout the illness trajectory. The major goals of this cluster randomized trial (CRT) are to (1) evaluate the comparative effectiveness of usual care and JUMPSTART- ANAI, a culturally tailored ACP communication intervention, for prompting patient-driven ACP conversations between ANAI adults and primary care providers and to (1) identify key factors to successfully implement the intervention in health systems serving ANAI adults with serious illness.
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
None
Disqualifiers
None
Trial design
Parallel
Treatments tested in this trial
JUMPSTART-ANAI
BehavioralPatient questionnaire about experiences, preferences, and concerns regarding ACP followed by feedback form with "tips" for initiating ACP conversation with provider at next clinical visit.
Treatment groups
Trial outcomes
Primary outcomes
Number of participants with an advance directive in the electronic health record
New advance directive scanned into EHR
Secondary outcomes
Quality of communication
Patient-rated quality of patient-provider communication
Psychological distress
Symptoms of anxiety and depression
Sponsors and contacts
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Southcentral Foundation
Lead sponsor
University of Alaska Fairbanks
Sponsor institution
University of Arkansas
Collaborator
University of Washington
Collaborator
University of Colorado, Denver
Collaborator
Alaska Native Tribal Health Consortium
Collaborator
University of Alaska Fairbanks
Collaborator
National Institute of Nursing Research (NINR)
Collaborator