About this trial
A learning difference or disability is a reduction in intellectual ability (GMC, 2024). It causes lifelong difficulty with everyday activities. Different individuals require different levels of support. Individuals with learning disability may also have learning difficulties and mental health problems, but these conditions do not always co-exist. Learning difficulties affect the way someone processes information. They are not related to intelligence but can affect learning and education. People with learning differences can experience higher rates of mental and physical ill-health. The individual's life expectancy is shorter than the average for the population. This is related to access and experience of health care. These patients may experience discrimination affecting their healthcare.
Discrimination arises from staff and organisational attitudes towards patients and judgements about their quality of life. These individuals' care is also at risk of diagnostic overshadowing where a patient's symptoms are attributed to their disability rather than a disease. Many people with learning disabilities may find it harder to use healthcare services, and the investigators want to find out what challenges these individuals face. For example, do these patient have trouble understanding what is being said to them? Are there issues with getting an appointment or understanding the information about their health?
This project focuses on understanding the experiences of people with learning disabilities when they use health services. How easily do can these individuals communicate with their clinician? Are there barriers in accessing care? Do these individuals feel respected and listened to during their appointments? How should healthcare staff be trained to provide better care to these patients? The investigators will be speaking directly to patients with learning disabilities living in Derbyshire. This will be by interviews encouraging the patients to share their thoughts and experiences. The information the investigators gather will help understand these people's experiences of healthcare and how this could be improved. The investigators will also undertake an anonymised survey of medical students on their perceived learning needs regarding individuals with learning differences. This information will be used to develop educational resources for clinical teachers. medical students and staff. Working with the volunteers will better prepare future doctors to provide holistic care for patients with learning differences.
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
Volunteers will be recruited from participants in teaching sessions to GEM medical students held in September and October 2025. This will be using convenience sampling. Up to 120 students currently on the GEM Year 1 preclinical programme at the time of the study will be invited to complete the study.
Disqualifiers
All who do not meet the inclusion criteria defined above
Trial population
Individuals with an experience of learning difference based on personal history or a caring role and graduate entry preclinical students at a single institution in the United Kingdom
Trial design
Case-only
Cross-sectional
Treatments tested in this trial
Experience of healthcare
Other interventionIndividual participants experience of access and receiving healthcare. Individuals insights and reflections on the educational needs of doctors and medical students in the needs of individuals with learning differences
Treatment groups
Trial outcomes
Primary outcomes
Individual and medical student perspectives on the learning needs and expectations of training of future doctors in healthcare for individuals with learning differences
Data drawn from interviews with volunteers with personal history of learning difference and a survey of preclinical medical students
Secondary outcomes
Can these needs and expectations be met through a volunteer-led teaching and learning dialogue with graduate entry preclinical students?
Outcome of teaching where the content is based on the themes identified in the interviews with volunteers and the survey
Sponsors and contacts
Click on the lead sponsor to view all of their trials.
This trial is not recruiting at the moment. You can still explore other options: