Fibrous dysplasia is a rare bone disorder in which normal bone is replaced by fibro-osseous tissue. Craniofacial involvement may be associated with substantial morbidity and complex multidisciplinary care. CRANIO-DF aims to describe morbidity, management and outcomes in adults with craniofacial fibrous dysplasia using the French national EasyHYBRID-DF database.
Age 18 years or older
Diagnosis of fibrous dysplasia recorded in HYBRID-DF
Craniofacial involvement recorded in HYBRID-DF
No objection to reuse of data for research
Erroneous diagnosis of fibrous dysplasia recorded in HYBRID-DF
Available data do not allow craniofacial involvement to be established
Adults with fibrous dysplasia and documented craniofacial involvement recorded in the French national EasyHYBRID-DF database, including monostotic craniofacial disease and polyostotic disease involving the craniofacial skeleton.
Other
Retrospective
No Intervention: Observational Cohort
Other interventionNo Intervention
Presence of at least one documented morbid event or manifestation
Binary outcome (yes/no): presence of at least one morbid event or manifestation documented in HYBRID-DF during available follow-up, including relevant bone, neurological, surgical, malignant, endocrine or other recorded morbidity.
Nature of documented morbid events or manifestations
Nature of events/manifestations, number of events per patient, time to event when a date is available, and recurrence/progression when recorded.
Burden of documented morbid events or manifestations
Burden of events/manifestations, number of events per patient, time to event when a date is available, and recurrence/progression when recorded.
Disease management
Type and duration of bone-targeted and/or surgical treatments
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