The Morphea in Adults and Children (MAC) cohort is the first registry for both children and adults with morphea (also known as localized scleroderma) in the country. The purpose of the registry is to learn more about morphea, specifically:
* How morphea behaves over time * How frequently specific problems occur along with morphea (for example, arthritis) * Whether morphea has an autoimmune background
Patient must have a clinical diagnosis of morphea confirmed by the primary investigator and by histopathological examination.
Ages 0-90 years old
Children must weigh more than 20 lbs. in order to satisfy Children's Medical Center policy for the maximum amount of blood drawn in a 24 hour period.
Patient or legal guardian must be able to speak and read at a 6th grade reading level.
None
Recruitment from clinic visits as well as from regional and national referrals.
Cohort
Prospective
Morphea
Other interventionActivity/damage measurement in morphea as scored on the Localized Scleroderma Cutaneous Assessment Tool (LoSCAT)
Quality of life scores measured by the Dermatology Life Quality Index (DLQI)
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