Myasthenia Gravis Foundation of America Global MG Patient Registry

ConditionsMyasthaenia Gravis Myasthenia Myasthenia Gravis Associated with Thymoma Myasthenia Gravis Crisis Myasthenia Gravis Exacerbations Myasthenia Gravis Generalised Myasthenia Gravis with Exacerbation (Disorder)Myasthenia Gravis, Adult Form Myasthenia Gravis, Generalized Myasthenia Gravis, Ocular Myasthenia Gravis, Thymectomy Myasthenia Gravis Myasthenia Gravis, MuSK

Trial statusRecruiting

Trial phaseNot listed

Trial typeObservational

Biological sexAll

Age18+

SponsorMyasthenia Gravis Foundation of America

About this trial

The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are:

* How and when are people with MG diagnosed? * What are the most common symptoms associated with MG? * What treatments are being used to treat MG? * What are the impacts of MG on activities of daily living, employment and quality of life? * What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.

Eligibility criteria

This trial does not accept healthy volunteers

Qualifiers

age over 18

positive MG diagnosis

Disqualifiers

age under 18

misdiagnosed with MG

Trial population

Participants with access to a mobile device or desktop computer with internet connection are eligible to participate in this study

Trial design

Design model

Cohort

Time perspective

Prospective

Treatments tested in this trial

Not listed

Trial groups

3,800 Participants

are grouped into 1 trial group

Group A: Participants

Trial outcomes

Primary outcomes

Diagnosis of MG

Whether the patient has a confirmed MG diagnosis.

Time frame

At enrollment

Sponsors and contacts

Click on the lead sponsor to view all of their trials.

Myasthenia Gravis Foundation of America

Lead sponsor

Alira Health

Collaborator

Source ClinicalTrials.gov

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