MyPaTH Story Booth
ConditionNarrative Medicine
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18-99
SponsorUniversity of Pittsburgh
About this trial
The MyPaTH Story Booth will use an (audio) "document" approach to elicit in depth experiential knowledge or perspectives from patients and caregivers by recording their personal stories.
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
Over the age of 18
Disqualifiers
Researchers will exclude individuals who are not 18 years of age or older and/or do not provide informed consent
Trial population
Anyone over the age of 18 who can provide informed consent
Trial design
Design model
Other
Time perspective
Prospective
Treatments tested in this trial
Not listed
Trial groups
No trial groups listed
Trial outcomes
Primary outcomes
1
Number of stories collected
The goal of the project is to generate a searchable archive of patient and caregiver narratives
Time frame
September 2018Secondary outcomes
1
Comparison of approaches to categorize story contents
Researchers will compare how story contents are categorized using (a) qualitative research coding with survey data collected from (b) participants and (c) study staff
Time frame
Cross-sectional analysis of the first 100 stories, September 20182
Number of researchers who access the online story archive
To support health researchers' use of patient and caregiver narratives in formulating research questions
Time frame
Annually at 2 and 3 years of follow-up the number of researchers who accessed stories will be reviewed.3
Number of research teams who engage stakeholders through the project
The project aims to facilitate connections between individuals who have real-world insights and experience with health care or health care delivery and health researchers.
Time frame
Annually at 2 and 3 years of follow-upSponsors and contacts
Click on the lead sponsor to view all of their trials.
Source ClinicalTrials.gov