Aim 1: Refine the HRSN navigation model to integrate a digital platform (Findhelp.org) to meet the needs of AYAs. The investigators will conduct iterative co-design sessions with AYAs and caregivers to understand their views on the existing Findhelp.org website and the likely need for other human-to-human and digital strategies to augment platform engagement (e.g., text reminders) and to address vocational needs.
Aim 2: Evaluate the feasibility and acceptability of the refined hybrid intervention that includes digital + person-to-person HRSN navigation.
Aim 3: Explore the preliminary impact of the refined hybrid intervention, compared to elevated usual care (a one-time referral to FindHelp.org alone), on reduction in financial distress (AYA and caregiver) and on AYA global health (i.e., mental, social, physical).
AYAs (age 18-39) who have/had a diagnosis of cancer are eligible to participate.
English or Spanish-speaking
AYAs (age 15-39) who were diagnosed with cancer or began treatment for cancer within the past 6 months, or those who are still on first treatment for cancer (non-relapse)
English or Spanish-speaking
Dyad with caregiver or younger AYA that previously participated in study AAAU2405 or AAAY9477
Unable to complete financial survey questions or contraindicated (as outlined in Protection of Human Subjects)
Dyad with younger AYAs who are enrolled on hospice or receiving other end-of-life care
Columbia University
Lead sponsor
National Institute of Nursing Research (NINR)
Collaborator