The aims of this study are to test the effectiveness of a nurse-led integrated home health service to enhance parental self-efficacy in symptom management for children requiring respiratory support, and alongside identify factors facilitating or deterring the program implementation.
A single group pre-post quasi-experimental study on parents of CMC requiring respiratory support.
Parents will be recruited from non-government organizations, with an estimated sample size of 80 parents. Self-administrated questionnaire, and semi-structured interview guide will be used for data collection.
parent of a child with respiratory support aged 6-month to 22 years old
having a Smartphone
able to communicate in Chinese or in English
living with his/her child at home.
a reported mental health disorder
engaging in other structured programs related to symptom management
living in an area with no internet coverage
Single group
Nurse-led integrated home service
Other interventionNurse-led integrated home service to support parents in Symptom Management for Children With Respiratory Support for a 3-month period.
Caregiving Self-efficacy
The scale consists of 18 items to measure the self-efficacy of Chinese caregivers. It is rated on a 9-point scale, with 1= no confidence, to 9 =full confidence.
Implementation evaluation
Semi-structured interviews will be conducted to the related community stakeholders to evaluate the quality of service provided. Semi-structured interview guide will be used to collect qualitative data in four perspectives including: 1. reach: document the number of participants, and retention in the intervention 2. adoption: seek to find out if the intervention is appropriate and in action 3. implementation: understand stakeholders' perception if the intervention is acceptable and implemented as planned 4. maintenance: explore the facilitators and barriers in the sustainability of the nurse-led integrated home service
Modified Memorial Symptom Assessment Scale
This is a modified 40-item Memorial Symptom Assessment Scale (MSAS in Chinese version). The items for measuring the frequency and severity of symptoms are rated on a 4-point Likert scale from one (almost never) to four (always). The items for measuring distress are rated on a 5-point Likert scale from one (not at all) to five (very). A higher score on each subscale indicates the child is experiencing more symptom burden.
Children health service utilization
This is a record used to summarize a child's visits to outpatient clinic and emergency room, and the child's admission history. Higher non-scheduled health visit rates mean the child's health condition worsen
Depression Anxiety Stress Scale (DASS) (Chinese version)
DASS is a self-report instrument consisting of 21 items used to assess the states of depression, anxiety and stress in parents. It is rated on a 4-point scale from 0 (does not apply to me at all) to 3 (applies to me very much, or most of the time). A higher score on each subscale indicates more severe symptoms of depression, anxiety and stress.
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Dr Winsome Lam
Lead sponsor
The Hong Kong Polytechnic University
Sponsor institution
