The aims of this study are to test the effectiveness of a nurse support using a proactive mobile app to enhance parental self-efficacy in symptom management for children using mechanical ventilations, and alongside identify factors facilitating or deterring the program implementation.
A single group pre-post quasi-experimental study on parents of CMC requiring mechanical ventilation.
Parents will be recruited from a non-government office, with an estimated sample size of 52 parents. Self-administrated questionnaire, and semi-structured interview guide will be used for data collection.
parent of a child with mechanical ventilation aged 2-18
having a Smartphone
able to communicate in Chinese and read Chinese
living with his/her child at home.
a reported mental health disorder
engaging in other structured programs related to symptom management 3) living in an area with no internet coverage.
Single group
Nurse parental support using a proactive mobile App
DeviceNurse parental support using a proactive mobile App in symptom management for child with mechanical ventilation
Caregiving Self-efficacy
The scale consists of 18 items to measure the self-efficacy of Chinese caregivers. It is rated on a 9-point scale, with 1= no confidence, to 9 =full confidence.
Implementation evaluation
Semi-structured interviews will be conducted to the related community stakeholders to evaluate the quality of service provided. Semi-structured interview guide will be used to collect qualitative data in four perspectives including: 1. reach: document the number of participants, and retention in the intervention 2. adoption: seek to find out if the intervention is appropriate and in action 3. implementation: understand stakeholders' perception if the intervention is acceptable and implemented as planned 4. maintenance: explore the facilitators and barriers in the sustainability of the nurse parental support using a proactive mobile app
Modified Memorial Symptom Assessment Scale
This is a modified 40-item Memorial Symptom Assessment Scale (MSAS in Chinese version). The items for measuring the frequency and severity of symptoms are rated on a 4-point Likert scale from one (almost never) to four (always). The items for measuring distress are rated on a 5-point Likert scale from one (not at all) to five (very).
Children health service utilization
This is a record used to summarize a child's visits to outpatient clinic and emergency room, and the child's admission history.
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