About this trial
observational epidemiological study of patients affected by systemic amyloidosis
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
patients diagnosed with amyloidosis or asymptomatic carriers of mutations in the transthyretin gene
minimum age of 18 years at the time of diagnosis
obtaining informed consent
Disqualifiers
nothing
Trial population
The study population includes all adult patients referred to the participating centers with a diagnosis of amyloidosis or carriers of pathogenic mutations starting from 01/01/1981 diagnosed in accordance with current international guidelines.
Trial design
Cohort
Other
Treatments tested in this trial
Not listed
Trial groups
Trial outcomes
Primary outcomes
prevalence of amyloidosis
prevalence of amyloidosis in patients admitted to the UOs participating in the study
incidence of amyloidosis
incidence of amyloidosis in patients admitted to the UOs participating in the study
Observational epidemiological study of patients with systemic amyloidosis
characteristics of each etiology in terms of baseline clinical data
Types of cardiac clinical phenotype
Cardiac clinical phenotype in patients who at baseline are asymptomatic carriers of pathogenic mutations
Sponsors and contacts
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