Observational Study of Pediatric Rheumatic and Immunologic Diseases in China: The CAPRID Registry

Number of Enrolled Patients

Total number of patients with pediatric rheumatic and immunologic diseases enrolled in the registry

Physician Global Assessment

Visual Analog Score measurement of disease activity by physicians. The minimum value is 0 and the maximum is 10.

Patient or Parent Global Assessment

Visual Analog Score measurement of disease activity by patient's parent or patient him or her self (above 8 years old). The minimum value is 0 and the maximum is 10.

Proportion of Participants with Clinically Inactive Disease

Defined by normal disease activity indexes (if available) and normal inflammatory markers (erythrocyte sedimentation rate and C-reactive protein). Disease activity indexes include Systemic Lupus Erythematosus Disease Activity Index 2000 (SLEDAI-2K) for systemic lupus erythematosus; Juvenile Arthritis Disease Activity Score (JADAS)-27 for juvenile idiopathic arthritis, Pediatric Vasculitis Activity Score (PVAS) for vasculitis; Manual Muscle Testing(MMT)8, Childhood Myositis Assessment Scale (CMAS) for juvenile dermatomyositis, Sjögren's syndrome disease activity index (ESSDAI) for Sjögren's syndrome, Modified Rodnan Skin Score for scleroderma.

Childhood Health Assessment Questionnaire (CHAQ)

Composite measure of functional disability, score from 0 (no disability) to 3 (severe disability)