the primary outcome is to describe the perceived success of the use of the respiratory support from the parent's point of view
Children with respiratory support at home
Age 0 to 18 (not yet passed) years old
Palliative care
Invasive ventilation
High flow oxygen therapy
Our study population includes patients from the Grenoble Alpes Hospital, from 0 to 18 (not yet passed) years old. These patients benefit from respiratory support at home. Their follow-up is done at the Grenoble Alpes Hospital. We will not include patients who benefit from palliative care, invasive ventilation or high flow oxygen therapy.
Case-only
Prospective
Not listed
describe the perceived success of the use of the respiratory support from the parent's point of view
The primary outcome measure is the median score and interquartile range, obtained from the answer modalities according to the Likert scale (scores ranging from 1 to 5), in response to the question from the parent interview guide, which states: "Do you consider that the ventilatory support proposed for your child is a success? Please circle the corresponding score."
Describe the persistence of symptoms under ventilatory support according to the parent.
Answer to the question from the parent interview guide: "What symptoms did your child have before starting treatment? Have these symptoms improved?"
Describe the persistence of symptoms under ventilatory support according to the child
Answer to the question from the child interview guide: "Were you bothered before getting the machine? Is it better with the machine?"
Describe the tolerance of ventilatory support according to the parent.
Answer to the question from the parent interview guide: "Have you noticed any complications since your child started using the machine?"
Describe the tolerance of ventilatory support according to the child.
Answer to the question from the child interview guide: "Does the machine bother you?"
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