The research database contains demographic and family history information, longitudinal information on the clinical symptoms, neuropsychological profile and treatments, stored biological samples, and brain images of patients with Parkinson's disease and related disorders receiving care at the Parkinson's disease and Movement Disorders Center and the Hospital of the University of Pennsylvania.
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Population will be derived from outpatient clinics, support groups, self-referral, and community members.
Cohort
Other
neuropsychiatric and cognitive testing questionnaires
BehavioralDemographic data such as race, sex, age Family History Risk Factor Questionnaire Hoehn and Yahr Stage UPDRS Parkinson's symptom checklist Medication list Neuropsychological Test Battery Behavioral Exams * Geriatric Depression Scale Quality of Life Questionnaire * PDQ-39, SF-12
Long term effects of Parkinson's disease
Determine the long term effects of Parkinson's disease and related conditions, including predictors of its motor and non-motor symptoms
Genetic and Neurobiological factors
Identify genetic and other neurobiological factors related to the risk of developing Parkinson's disease and related disorders and their course
Identification and Diagnosis of Parkinson's disease
Improve our understanding of how best to identify, diagnose, and manage motor and non-motor symptoms of Parkinson's disease and related conditions
Click on the lead sponsor to view all of their trials.
University of Pennsylvania
Lead sponsor
National Institute on Aging (NIA)
Collaborator
