The overall goal of this study is to attempt to overcome the organizational barriers that impede prompt screening for at-risk sensory deficits in childhood cancer survivors (CCS). Using a cross sectional design study, collaborators in the Informatics Research branch of the Institute of Informatics at the Washington University School of Medicine will identify CCS at risk for sensory deficits based upon their therapy exposure to generate the highlighting patients at risk for sensory screening (HPARSS) document. The investigators will utilize the HPARSS that will link therapy related risks for sensory deficits to specific screening procedures prompting the primary oncology provider to implement screening, diagnostic testing, and therapy.
Patients with a diagnosis of pediatric cancer (diagnosis at <18 years of age)
Treatment including chemotherapy and/or radiation therapy
Completion of all cancer therapy for at least 6 months and less than 2 years
Followed in the Division of Pediatric Hematology/Oncology Program at the Washington University School of Medicine
Undergoing active cancer treatment
Patient under the care of the Late Effects Program at St. Louis Children's Hospital
Received previous diagnostic testing or rehabilitative therapy for a secondary deficit eligible for screening.
Parents and/or patient illiteracy
Parallel
Highlighting Patients at Risk for Sensory Screening (HPARSS)
Other interventionCollaborators in the Informatics Research branch of the Institute of Informatics at the Washington University School of Medicine will identify CCS at risk for sensory deficits based upon their therapy exposure to generate the HPARSS document.
Percentage of patients with at risk for sensory deficits identified by HPARSS
Percentage of at risk patients who fail the assigned screening test
Percentage of patients in need of referral for screen test results who participate in formal diagnostic testing and/or treatment
Number and types of barriers to participation in formal diagnostic testing and therapy in CCS failing to engage in sensory screening
Number and types of facilitators to participation in formal diagnostic testing and therapy in CCS failing to engage in sensory screening
Acceptability of HPARSS as measured by the Acceptability of Intervention Measure (AIM)
-4 questions inquiring about the acceptability of HPARSS with answers ranging from completely disagree=1 to completely agree=5. The higher the score indicates higher acceptability of the HPARSS.
Feasibility of intervention as measured by Feasibility of Intervention Measure (FIM)
-4 questions inquiring about the feasibility of HPARSS with answers ranging from completely disagree=1 to completely agree=5. The higher the score indicates higher feasibility of the HPARSS.
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Washington University School of Medicine
Lead sponsor
St. Jude Children's Research Hospital
Collaborator
