A transition consultation for adult patients with esophageal atresia, involving medical and paramedical stakeholders, was set up at Hôpital Saint-Louis in 2020. The aim of this initiative is to: 1. initiate adult medical, psychological and social follow-up; 2. empower these adults in their future care; 3. establish a personalized follow-up schedule. This project is the first to focus on post-traumatic stress disorder (PTSD) in young adults with esophageal atresia. A 3-year analysis of the somatic and psychosocial variables analyzed will confirm the validity of this initiative, and define its optimal contours for improving these patients' quality of life as adults.
Patients with esophageal atresia
Aged 18 to 30
Followed at Hôpital Saint Louis
Informed and not opposed to the study
Inability to answer questionnaires
Patients under guardianship
Patients under AME (Aide Médicale d'Etat in France)
Young adults with esophageal atresia
Cohort
Prospective
Follow-up of the patients during 3 years
Other interventionEvaluation of PTSD prevalence, anxiety-depressive state, quality of life, look for a correlation between their clinical history and PTSD. Analysis of the nutritional, gastrointestinal and respiratory status.
Prevalence of Post Traumatic Stress Disorder
Hospital Anxiety and Depression score
The HAD scale is a self-assessment scale for detecting states of depression and anxiety in the setting of an hospital medical outpatient clinic. HAD scale is a self-administered scale of 14 items which assessed levels of depression and anxiety, divided into 2 subscales of 7 items (Anxiety or HADS-A, Depression or HADS-D). Each item is scored on a scale of 0 to 3. A score is generated for each of the two sub-scales (sum of the 7 items, ranging from 0 to 21). A higher score indicates worse outcome.
Hospital Anxiety and Depression score
The HAD scale is a self-assessment scale for detecting states of depression and anxiety in the setting of an hospital medical outpatient clinic. HAD scale is a self-administered scale of 14 items which assessed levels of depression and anxiety, divided into 2 subscales of 7 items (Anxiety or HADS-A, Depression or HADS-D). Each item is scored on a scale of 0 to 3. A score is generated for each of the two sub-scales (sum of the 7 items, ranging from 0 to 21). A higher score indicates worse outcome.
Quality of life evaluation
EA QOL questionnaire The score includes 4 domains : eating, social relationships, body perception, and health and well-being. The score varies between 0 to 100, the higher score the higher the quality of life.
Quality of life evaluation
EA QOL questionnaire The score includes 4 domains : eating, social relationships, body perception, and health and well-being. The score varies between 0 to 100, the higher score the higher the quality of life.
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