This research aims to underpin qualitative work with people living with a diagnosis of AAV and healthcare professionals working with people living with AAV, to explore different perspectives on Shared Decision Making (SDM) in AAV. The aim is to develop key principles to consider in the future development of shared decision-making tools and interventions for use in clinical practice.
People who have a diagnosis of ANCA- associated vasculitides (AAVs)
Aged 18 years or older.
People should have capacity to give informed consent.
People should have a good understanding of spoken and written English to be able to understand the participant information sheets, and consent forms.
People who do not have ANCA-associated vasculitis
People less than 18 years of age
People without capacity to give informed consent
People who are not able to take part in the focus group in English
People living with AAV will be purposively sampled to include a spectrum of participants with a range of different diseases, stages and demographics (age, gender, geographical location). Healthcare professionals (HCPs) will be purposively sampled to include a range of different specialities/roles, experience and geographical locations.
Cohort
Prospective
Not listed
Domains of importance and contextual factors in relation to shared decision making in ANCA-associated vasculitis.
This is a qualitative focus group study with patients living with ANCA-associated vasculitis and their clinicians. No specific quantitative outcome measures will be collected as part of the focus groups. Thematic analysis and Framework analysis will be used to determine themes of importance in relation to optimal shared decision making in terms of timing, disease duration, stage of treatment (induction, remission, maintenance, flare), who should take part in SDM and useful resources or education materials.
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