Spanish Wilson Disease Registry
ConditionWilson Disease
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorAsociación Española para el Estudio del Hígado
About this trial
The main objective and purpose of the Registry is to know the current status of Wilson Disease in Spain.
As secondary objectives, the prevalence and incidence of the disease will be analysed.
Likewise, the analysis aims to define future areas of interest in its pathogenesis, diagnosis, natural history, follow-up, prognosis and treatment.
Improving knowledge at a national level can help to design screening strategies and improve diagnostic circuits.
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
Patients with a confirmed Wilson Disease diagnosis
Disqualifiers
Refusal to sign the informed consent for the study
Trial population
Wilson Disease patients under follow-up in participating centres in Spain who agree to participate in the registry by signing the informed consent form.
Trial design
Design model
Case-only
Time perspective
Other
Treatments tested in this trial
Not listed
Trial groups
No trial groups listed
Trial outcomes
Primary outcomes
1
To know the current status of Wilson Disease in Spain
Time frame
2025Secondary outcomes
1
To analyse the prevalence of Wilson Disease in Spain
Time frame
20252
To analyse the incidence of Wilson Disease in Spain
Time frame
2025Other outcomes
1
To define future areas of interest in Wilson Disease
To define future areas of interest in the disease pathogenesis, diagnosis, natural history, follow-up, prognosis and treatment
Time frame
2025Sponsors and contacts
Click on the lead sponsor to view all of their trials.
Source ClinicalTrials.gov